Evidenced Based Management: A Journey for Physicians
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Historical Perspective, Epidemiology, and Methodology
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Overview of the SCD guidelines and chapters
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Process and methodology
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Consensus Statements
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Clinical Practice Guidelines and the institute of Medicine
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Prevention of invasive infection
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Screening for Renal Disease
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Electrocardiogram Screening
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Screening for hypertension
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Screening for Retinopathy
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Screening for risk of stroke using neuroimaging
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Screening for Pulmonary disease
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Reproductive counseling
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Contraception
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Clinical Preventive services
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Immunizations
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Vaso-Occlusive Crisis
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Fever
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Acute Renal Failure
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Priapism
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Hepatobiliary Complications
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Acute Anemia
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Splenic Sequestration
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Acute Chest Syndrome
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Acute Stroke
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Multisystem Organ Failure
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Acute Ocular Conditions
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Chronic pain
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Avascular Necrosis
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Leg Ulcers
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Pulmonary Hypertension
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Renal Complications
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Stuttering/Recurrent Priapism
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Ophthalmologic Complications
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Summary of the Evidence
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Hydroxurea Treatment Recommendations
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Consensus Treatment Protocol and Technical remarks for the implementation of Hydroxyurea Therapy
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Indications for transfusions
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Recommendations for Acute and Chronic Transfusion Therapy
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Appropriate Management/ Monitoring
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Consensus Protocol for Monitoring Individuals on Chronic Transfusion Therapy
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Complications of Transfusions
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Recommendations for the Management and Prevention of Transfusion Complications
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New Research is Needed
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Data Systems That Meet the Highest Standards of Scientific Rigor Can Be Invaluable
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Improved Phenotyping is needed
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Broad collaborations for Research and Care
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Beyond Efficacy
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Look, Listen, Empathize and Ask
Participants 164
Clinical Practice Guidelines and the institute of Medicine
SCFA_Coach September 25, 2023
In April 2011, 12 months after the start of the first of the expert panel report’s systematic reviews, the Institute of Medicine (IOM) published “Clinical Practice Guidelines We Can Trust. Although at that point, the panel’s processes were already identified and in progress, it was determined that the panel’s report was well aligned with the main points that the IOM standards identified as critical to trustworthy guidelines (establishing transparency, managing conflict of interest, guideline development group composition, clinical practice guidelines-systematic review intersection, establishing evidence foundations for and rating strength of recommendations, articulation of recommendations, external review, and updating). Because the panel’s work began prior to the release of the IOM standards, it did not include a patient representative, the questions considered were not disseminated for public comment, and at this time, no updates are planned for this guideline document.
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