-
Historical Perspective, Epidemiology, and Methodology
-
Overview of the SCD guidelines and chapters
-
Process and methodology
-
Consensus Statements
-
Clinical Practice Guidelines and the institute of Medicine
-
Prevention of invasive infection
-
Screening for Renal Disease
-
Electrocardiogram Screening
-
Screening for hypertension
-
Screening for Retinopathy
-
Screening for risk of stroke using neuroimaging
-
Screening for Pulmonary disease
-
Reproductive counseling
-
Contraception
-
Clinical Preventive services
-
Immunizations
-
Vaso-Occlusive Crisis
-
Fever
-
Acute Renal Failure
-
Priapism
-
Hepatobiliary Complications
-
Acute Anemia
-
Splenic Sequestration
-
Acute Chest Syndrome
-
Acute Stroke
-
Multisystem Organ Failure
-
Acute Ocular Conditions
-
Chronic pain
-
Avascular Necrosis
-
Leg Ulcers
-
Pulmonary Hypertension
-
Renal Complications
-
Stuttering/Recurrent Priapism
-
Ophthalmologic Complications
-
Summary of the Evidence
-
Hydroxurea Treatment Recommendations
-
Consensus Treatment Protocol and Technical remarks for the implementation of Hydroxyurea Therapy
-
Indications for transfusions
-
Recommendations for Acute and Chronic Transfusion Therapy
-
Appropriate Management/ Monitoring
-
Consensus Protocol for Monitoring Individuals on Chronic Transfusion Therapy
-
Complications of Transfusions
-
Recommendations for the Management and Prevention of Transfusion Complications
-
New Research is Needed
-
Data Systems That Meet the Highest Standards of Scientific Rigor Can Be Invaluable
-
Improved Phenotyping is needed
-
Broad collaborations for Research and Care
-
Beyond Efficacy
-
Look, Listen, Empathize and Ask
Lesson 47 of 49
In Progress
Broad collaborations for Research and Care
SCFA_Coach September 25, 2023
SCD is a chronic condition that impacts every part of a person’s body and most aspects of their daily life. Research regarding such conditions requires broad-based expertise. This process has begun to take shape during the past decade, with neurologists, pulmonologists, behavioral scientists, and health services researchers using their unique training and tools to improve SCD management. The communities of pain specialists, epidemiologists, informatics experts, and basic and translational scientists should come together to develop the framework for future management guidelines for SCD.
Responses