360° SCD Hub
360° SCD Hub
Back to Course

Evidenced Based Management: A Journey for Physicians

0% Complete
0/0 Steps
  1. Historical Perspective, Epidemiology, and Methodology
  2. Overview of the SCD guidelines and chapters
  3. Process and methodology
  4. Consensus Statements
  5. Clinical Practice Guidelines and the institute of Medicine
  6. Prevention of invasive infection
  7. Screening for Renal Disease
  8. Electrocardiogram Screening
  9. Screening for hypertension
  10. Screening for Retinopathy
  11. Screening for risk of stroke using neuroimaging
  12. Screening for Pulmonary disease
  13. Reproductive counseling
  14. Contraception
  15. Clinical Preventive services
  16. Immunizations
  17. Vaso-Occlusive Crisis
  18. Fever
  19. Acute Renal Failure
  20. Priapism
  21. Hepatobiliary Complications
  22. Acute Anemia
  23. Splenic Sequestration
  24. Acute Chest Syndrome
  25. Acute Stroke
  26. Multisystem Organ Failure
  27. Acute Ocular Conditions
  28. Chronic pain
  29. Avascular Necrosis
  30. Leg Ulcers
  31. Pulmonary Hypertension
  32. Renal Complications
  33. Stuttering/Recurrent Priapism
  34. Ophthalmologic Complications
  35. Summary of the Evidence
  36. Hydroxurea Treatment Recommendations
  37. Consensus Treatment Protocol and Technical remarks for the implementation of Hydroxyurea Therapy
  38. Indications for transfusions
  39. Recommendations for Acute and Chronic Transfusion Therapy
  40. Appropriate Management/ Monitoring
  41. Consensus Protocol for Monitoring Individuals on Chronic Transfusion Therapy
  42. Complications of Transfusions
  43. Recommendations for the Management and Prevention of Transfusion Complications
  44. New Research is Needed
  45. Data Systems That Meet the Highest Standards of Scientific Rigor Can Be Invaluable
  46. Improved Phenotyping is needed
  47. Broad collaborations for Research and Care
  48. Beyond Efficacy
  49. Look, Listen, Empathize and Ask

Participants 159

Show more
Evidenced Based Management: A Journey for Physicians Data Systems That Meet the Highest Standards of Scientific Rigor Can Be Invaluable
Lesson 45 of 49
In Progress

Data Systems That Meet the Highest Standards of Scientific Rigor Can Be Invaluable

SCFA_Coach September 25, 2023

Well-designed databases with linked biorepositories are required to complete observational studies and enable investigators to generate and test specific hypotheses. The databases must include longitudinal information on patient outcomes, therapies, health care services received, and the health system context in which the services were provided. The patient cohorts must be well-characterized by genotypic and phenotypic data. For example, this might be facilitated by mobilizing the Nation’s diverse newborn hemoglobinopathy screening programs to pool and analyze their data. Some of these State-supported and academic center-based programs already have assembled valuable information on treatment and long-term outcomes of individuals identified as having SCD, which could be leveraged for the longitudinal studies

Responses

Your email address will not be published. Required fields are marked *

Report

Harassment or bullying behavior
Contains mature or sensitive content
Contains misleading or false information
Contains abusive or derogatory content
Contains spam, fake content or potential malware

Block Member?

Please confirm you want to block this member.

You will no longer be able to:

  • See blocked member's posts
  • Mention this member in posts
  • Invite this member to groups
  • Message this member
  • Add this member as a connection

Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

Report

You have already reported this .