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Sickle Cell 101
Welcome from your guide to this lesson.1 Quiz -
Knowledge Matters: You Must Be Your Own Health Literate Advocate
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Who Is Affected by Sickle Cell Disease?
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What Causes Sickle Cell Disease?
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What is sickle cell disease?
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What Health Problems Do Sickle Cell Disease Cause?
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How Is Sickle Cell Disease Treated?
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Living with Sickle CellIs There a Cure for Sickle Cell Disease?
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Six Steps to Living Well With Sickle Cell Disease
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Emergency Guide: When to See the Doctor
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Five Tips to Help Prevent Infections
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Coping With Stress
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Fifteen Reasons Why Exercise Is Good
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Tools for Managing your HealthWhy should we live by this toolkit?
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Where Can I Find and Print the Forms for My Self-Care Toolkit?
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How Often Should I Update the Information in My Self-Care Toolkit? Teach me about the App.
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Who Should Know About My Self-Care Toolkit?
Quizzes
Participants 164
Is There a Cure for Sickle Cell Disease?
To date, the only cure for SCD is a bone marrow or stem cell transplant.
A bone marrow or stem cell transplant is a procedure that takes healthy stem cells from a donor and puts them into someone whose bone marrow is not working properly. These healthy stem cells cause the bone marrow to make new, healthy cells.
Bone marrow or stem cell transplants are very risky, and can have serious side effects, including death. For the transplant to work, the bone marrow must be a close match.
The are exciting developments for a gene therapy that is still highly experimental and very expensive. Watch for updates about it in some new lessons or blogs to be published by our experts next quarter.