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    SCFA_Coach

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    @SCFA_Coach • Joined Aug 2023 • Active 3 hours ago

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  • Articles (68)
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    Real Stories from People Living with Sickle Cell Disease: Courtney Stinnett

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    Courtney’s Story Living with sickle cell can be challenging and unpredictable, but I believe it makes us some of the strongest people on earth. The…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: The Johnson Family

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    The Johnson Family’s Story “When you lose your child, it’s real. It’s been 5 years for me. People will tell you time will heal, but…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Mikeia Green

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    Mikeia Green’s Story “I knew there were a lot of things I could do to help myself stay healthy. I didn’t want to end up…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Dr. Alvarez

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    Physician Perspective – Dr. Alvarez’s Story “When I have patients, I tell them that people with sickle cell trait (SCT) can have a normal lifespan and that…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Fatimah

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    Fatimah’s Story When both parents have sickle cell trait (SCT), there is a 1 in 4 chance that each of their children will have sickle cell disease…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Lance Jasper Jones

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    Lance’s Story Lance Jasper Jones is 31 years old, is engaged to be married, is in graduate school pursuing a master’s degree in clinical psychology,…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Shantá Robertson

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    Shantá’s Story Print Shantá and her family. From left, Ryan, Khari, Derek, Shantá, and Mikaili. Shantá and her husband Derek are the parents of three…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Rae Blaylark

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    Rae’s Story Rae Blaylark is the founder and Executive Director of the Sickle Cell Foundation of Minnesota; a certified community health worker; a certified hemoglobinopathy…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Mimi

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    Mimi’s Story Sickle cell disease (SCD) is an inherited blood disorder that can cause pain, anemia, infection, and other serious health problems. Although the exact number of…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Aaron Nicole

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    Aaron’s Story Aaron Nicole Washington is 25 years old and a sophomore in the Georgia Tech Excel Program, a program that gives people with developmental…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Lametra Scott

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    Lametra’s Story In September 2012, Lametra Scott gave birth to a baby boy. She named him Rickey. Before his birth, Lametra had no idea that…
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    September 25, 2023 CDC Content
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    Real Stories from People Living with Sickle Cell Disease: Phillip Okwo

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    Phillip Okwo’s Story Phillip Okwo is a former summer camp counselor at Camp Crescent Moon, a week-long sleep away camp for children with sickle cell disease…
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    September 25, 2023 CDC Content
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    Two Dates, One Mission: World Sickle Cell Day & September Awareness Month

    August 6, 2026

    Two dates on the calendar carry one powerful message: no one should face sickle cell disease alone. On June 19 the world recognizes World Sickle…

    Out & About: 14th Annual African American Conference on Disabilities & Chronic Health Symposium

    December 13, 2025

    Celebrating Advocacy, Collaboration, and Innovation: A Recap of the 14th African American Conference on Disabilities & Chronic Health Symposium On Friday, June 13th, 2025, I had…

    Out & About: Legacy in Action at the Kwame Lassiter Foundation Golf Classic

    December 2, 2025

    On a bright summer morning in Chandler, Arizona, advocates, athletes, and community leaders gathered at Ocotillo Golf Club for the 6th Annual Kwame Lassiter Foundation…

    Living with Sickle Cell: How It Affects Vision, Hearing, and Physical Ability

    May 30, 2025

    Sickle cell disease isn’t just about blood—it’s a whole-body condition that can affect much more than most people realize. While many are aware of the…

    Celebrating Community, Advocacy, and Innovation in Sickle Cell Disease Care

    February 28, 2025

    Event Recap: 2025 SCD Quarterly Community Roundtable – Advancing Together LIVE Broadcast Celebrating Community, Advocacy, and Innovation in Sickle Cell Disease Care On February 28,…

    Join Us for an Interactive Virtual Community Chat During National Sickle Cell Disease (SCD) Awareness Month!

    September 25, 2024

    Press Release FOR IMMEDIATE RELEASE Join Us for an Interactive Virtual Community Chat During National Sickle Cell Disease (SCD) Awareness Month! Tucson, AZ – September…

    Banner – University Family Care Showcases 360° SCD Hub and the Power of Partnerships at the Innovations in Medicaid Leadership Conference as Unique Strategy on Connecting with Hard-to-Reach Populations

    September 11, 2024

    Tucson, AZ – July 22, 2024 – The Sickle Cell Foundation of Arizona, in partnership with the Force for Health® Network, is proud to announce…

    Compassionate Citizens Crossword Challenge

    July 18, 2024

    A Call to Action for Public Health Leaders and Policymakers: Championing Sickle Cell Disease Awareness

    March 28, 2024

    As public health leaders and policymakers, you wield the power to enact significant changes that can improve the lives of those living with Sickle Cell…

    Top 10 Reasons to Sign Up for Free on the 360 SCD Hub App

    March 1, 2024

    Top 10 Reasons to Sign Up for Free on the 360 SCD Hub App 1. Personalized Health Tracking: Track your health progress, manage your Sickle…

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    © 2026 - The 360° SCD Hub™ brand, app and community is owned and operated by the Sickle Cell Foundation of Arizona a 501c3 non-profit from a grant funded by the Health and Human Services Administration. Special thanks to The Force for Health® Network, gamifying the sport of healthy global citizenship, for co-development and hosting the site and app.
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