Real Stories from People Living with Sickle Cell Disease: The Green Family
The Green Family Story “When AJ was born in 1992, there was a real lack of information and education about newborn screening and sickle cell…
Real Stories from People Living with Sickle Cell Disease: Geno Atkins
Geno’s Story “My story started when a young man met a young lady on the campus of Florida A&M University. On their first date he…
Real Stories from People Living with Sickle Cell Disease: Harry Williams Jr.
Harry Williams Jr. is 44 years old, married, and a public health analyst and former adjunct professor. He also is a sickle cell warrior and…
Real Stories from People Living with Sickle Cell Disease: Courtney Stinnett
Courtney’s Story Living with sickle cell can be challenging and unpredictable, but I believe it makes us some of the strongest people on earth. The…
Real Stories from People Living with Sickle Cell Disease: Nilda
Nilda’s Story My name is Nilda Maria Navedo, and I am 44 years young. I was born in New York City, raised in Washington Heights.…
Real Stories from People Living with Sickle Cell Disease: Vera
Vera’s Story “I test every Black woman for sickle cell, and I test every White woman for hemophilia.” That was what Vera’s doctor told her…
Real Stories from People Living with Sickle Cell Disease: Tasha
Tasha’s Story Tasha Hines is 39 years old, married, and a registered nurse at an internal medicine outpatient clinic. She also has sickle cell disease.…
Real Stories from People Living with Sickle Cell Disease: Blaze Eppinger
Blaze Eppinger & Camp New Hope Each year, Blaze Eppinger, who works for the Sickle Cell Foundation of Georgia and is a strong supporter of those living…
Real Stories from People Living with Sickle Cell Disease: Phillip Okwo
Phillip Okwo’s Story Phillip Okwo is a former summer camp counselor at Camp Crescent Moon, a week-long sleep away camp for children with sickle cell disease…
Real Stories from People Living with Sickle Cell Disease: Lametra Scott
Lametra’s Story In September 2012, Lametra Scott gave birth to a baby boy. She named him Rickey. Before his birth, Lametra had no idea that…