Lesson Category: Chapter 7: Looking Forward

Cure is always the most desirable outcome for any chronic disease. Therefore, research that increases the evidence for and availability of a cure for SCD…

Well-designed databases with linked biorepositories are required to complete observational studies and enable investigators to generate and test specific hypotheses. The databases must include longitudinal…

The new expanded databases and data systems should enable the development of clinical and perhaps health care resource utilization phenotypes of individuals with SCD. Phenotyping…

SCD is a chronic condition that impacts every part of a person’s body and most aspects of their daily life. Research regarding such conditions requires…

Perhaps the largest need is to translate the results of research that has been performed in laboratories and academic centers into community-based practice tools and…