Real Stories from People Living with Sickle Cell Disease: Phillip Okwo
Phillip Okwo’s Story Phillip Okwo is a former summer camp counselor at Camp Crescent Moon, a week-long sleep away camp for children with sickle cell disease…
Category: Real Stories from the CDC
Real Stories from People Living with Sickle Cell Disease: Lametra Scott
Lametra’s Story In September 2012, Lametra Scott gave birth to a baby boy. She named him Rickey. Before his birth, Lametra had no idea that…
Real Stories from People Living with Sickle Cell Disease: Aaron Nicole
Aaron’s Story Aaron Nicole Washington is 25 years old and a sophomore in the Georgia Tech Excel Program, a program that gives people with developmental…
Real Stories from People Living with Sickle Cell Disease: Mimi
Mimi’s Story Sickle cell disease (SCD) is an inherited blood disorder that can cause pain, anemia, infection, and other serious health problems. Although the exact number of…
Real Stories from People Living with Sickle Cell Disease: Rae Blaylark
Rae’s Story Rae Blaylark is the founder and Executive Director of the Sickle Cell Foundation of Minnesota; a certified community health worker; a certified hemoglobinopathy…
Real Stories from People Living with Sickle Cell Disease: Shantá Robertson
Shantá’s Story Print Shantá and her family. From left, Ryan, Khari, Derek, Shantá, and Mikaili. Shantá and her husband Derek are the parents of three…
Real Stories from People Living with Sickle Cell Disease: Lance Jasper Jones
Lance’s Story Lance Jasper Jones is 31 years old, is engaged to be married, is in graduate school pursuing a master’s degree in clinical psychology,…
Real Stories from People Living with Sickle Cell Disease: Fatimah
Fatimah’s Story When both parents have sickle cell trait (SCT), there is a 1 in 4 chance that each of their children will have sickle cell disease…
Real Stories from People Living with Sickle Cell Disease: Joshua
Joshua’s Story Joshua Adekunle is a high school senior who likes to play video games, draw, craft, and learn new things. He excels in school…
Real Stories from People Living with Sickle Cell Disease: Dr. Alvarez
Physician Perspective – Dr. Alvarez’s Story “When I have patients, I tell them that people with sickle cell trait (SCT) can have a normal lifespan and that…