Real Stories from People Living with Sickle Cell Disease: The Green Family
The Green Family Story “When AJ was born in 1992, there was a real lack of information and education about newborn screening and sickle cell…
The Green Family Story “When AJ was born in 1992, there was a real lack of information and education about newborn screening and sickle cell…
Geno’s Story “My story started when a young man met a young lady on the campus of Florida A&M University. On their first date he…
Nilda’s Story My name is Nilda Maria Navedo, and I am 44 years young. I was born in New York City, raised in Washington Heights.…
Vera’s Story “I test every Black woman for sickle cell, and I test every White woman for hemophilia.” That was what Vera’s doctor told her…
Tasha’s Story Tasha Hines is 39 years old, married, and a registered nurse at an internal medicine outpatient clinic. She also has sickle cell disease.…
Tristan’s Story I was diagnosed with sickle cell disease at 6 months of age in my hometown of Williamsport, Pennsylvania. At that time, I was…
Alissia Cofer’s Story Alissia Cofer is a former camp director at Camp Cell-A-Bration, a free, week-long camp in Burton, TX, for children aged 6–14 with sickle…
Blaze Eppinger & Camp New Hope Each year, Blaze Eppinger, who works for the Sickle Cell Foundation of Georgia and is a strong supporter of those living…
Phillip Okwo’s Story Phillip Okwo is a former summer camp counselor at Camp Crescent Moon, a week-long sleep away camp for children with sickle cell disease…
Lametra’s Story In September 2012, Lametra Scott gave birth to a baby boy. She named him Rickey. Before his birth, Lametra had no idea that…
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