A Collaborative Surveillance Initiative for Sickle Cell Disease Awareness in Arizona

Phoenix Children’s is excited to announce a groundbreaking collaborative surveillance project focusing on the population of individuals with Sickle Cell Disease (SCD) in Arizona. This initiative, conducted in partnership with the Centers for Disease Control and Prevention (CDC), Arizona State University’s Center for Health Information and Research (CHiR), Arizona Department of Health Services (AZDHS), Banner Health, the Sickle Cell Foundation of Arizona and members of the sickle cell community, aims to understand and learn about SCD at the population level in our state.

The Sickle Cell Data Collection (SCDC) initiative’s primary goals include to identifying resource challenges and using the findings to advocate for policy changes that will positively impact the sickle cell community in Arizona.

Uncovering Insights to Empower Sickle Cell Patients

ASU’s Center for Health Information and Research will serve as the data hub for this project. Their mission is to collect and analyze data from multiple sources, ensuring personal identifiers are removed. This will enable them to provide comprehensive insights into population locations, resource utilization, gaps in available services, and other critical factors. These results will educate partners on the challenges faced by sickle cell patients across Arizona.

Unveiling Hidden Gems: Insights from Key Project Figures 

Community Involvement

Our community partners play a vital role in this project, representing the sickle cell population in Arizona. They will share their personal experiences and expertise to help identify areas needing better and expanded services. Their involvement will also put a personal face in front of policymakers, crucial during discussions on the challenges faced by sickle cell patients.

Looking Ahead

As we move forward, we will reach out to the sickle cell community in Arizona, inviting them to share their stories, challenges, triumphs and hopes for the future. This collaborative effort aims to create a more informed and supportive environment for all those affected by sickle cell disease in our state.

More updates will be shared as we embark on this important journey to improve the lives of sickle cell patients through research, advocacy and community collaboration.