Tip 4: Advocate for Education in Schools

Many organizations and hospitals offer educational workshops specifically designed for individuals with sickle cell disease and their parents. These workshops cover a range of topics, from disease management to coping strategies.

Attending these events can help you gain valuable insights and connect with others facing similar challenges. You can also ask to get on the agenda for a presentation or share your thoughts in the question and answer or public comments time. You may be surprised how much influence you may have.