Building the 360° SCD Hub — together.
A progress update on our two active initiatives: the App Enhancement program and the Executive Dashboard Development — plus what’s coming next.
Two initiatives, moving in lockstep
This update covers both contracts at once — because every enhancement we ship now feeds directly into the dashboard and reporting the Foundation needs.
App Enhancement
Role-based onboarding, a far easier member experience, the Blossom Where You Are Planted (BWYAP) community buildout, and a major upgrade to the Health Trackers — plus brand-new Activity Trackers.
▲ Actively shippingExecutive Dashboard Development
Executive, Board, and Public views — built to tie every tracker into one place and stand ready for real-time data and one-click report generation.
▲ Build advancing
Everything members do — Learn It, Live It, Share It — now earns SickleSense Coins.
A warmer front door — guided by Coach Carla
New members now choose their path and get walked through setup step by step, landing in the right groups with the right resources — no guesswork.
Onboarding paths per role
Living with SCD, Medical Community, or General Community — each gets a tailored welcome, the right groups, and a starter pathway.
Coach Carla guides the way
A friendly, plain-language walkthrough from account creation to finish — with privacy made clear and consent reviewable.
Easier, cleaner experience
Fewer taps, mobile-first, “add to home screen” guidance, and a “Why are you here?” home that points members to Learn / Live / Share.
A new front door — and a home for every role New
The Hub now greets every visitor with a redesigned home page, walks them through a guided onboarding, and drops each member into a role-specific home built for exactly who they are.
New main home page
“Empower. Educate. Eradicate.” — a warm, branded front door for everyone touched by Sickle Cell, with clear paths to join.
Open the home page →Improved onboarding
A guided welcome tour + quick check-in earns members their first SickleSense Coins and maps them to their BWYAP community zone.
Try the onboarding →Role-specific hubs
Five tailored member homes — each with its own welcome, trackers, suggested pathways, and Coach Carla guide.
See a role hub →Blossom Where You Are Planted — fully built out
The BWYAP model now has structure top to bottom: five connected tiers, geographic community zones, and a home for every role to do their work and see their impact.
A massive upgrade to the Health Trackers Live
- Family-style tracking — log for yourself and your whole family in one place.
- Full-screen body map — easy, accurate pain-location tapping.
- Faster, more reliable reports — share a clean PDF with your care team in seconds.
- Common SCD medications, second-dose reminders, and adherence streaks.
- Care-team picker, calendar add, directions for appointments.
- Monthly & Level-Up challenges that pay out SickleSense Coins.
Brand-new Activity Trackers New
A separate, dead-simple logging tool for the people doing the work — three taps to capture every outreach, event, training, and connection, with effort-based SickleSense Coins.
Staff & CHWs
Log outreach, family visits, education, referrals, and follow-up calls in the field.
Volunteers & Advocates
Capture events, conversations, shares, and “shared my story” moments.
Zone Leaders & Advisory Council
Record partnership meetings, supervision, and strategic touches — all rolling up to the dashboard.
The Executive Dashboard — built for the Board & beyond
Three audiences, one source of truth. Designed so that as the trackers fill, the dashboard and funder reports build themselves.
Executive View
Operations, demographics, service units, Form 10 performance measures, telehealth, and community zones.
Board & Public Views
De-identified, board-ready and public-safe rollups — aggregate impact, no personal data.
Real-time & one-click reports
Ready to tie all trackers in for live numbers and on-demand Form 10 report generation.
- Every Health Tracker and Activity Tracker entry is designed to flow into the dashboard.
- Form 10 funder reporting maps to a deterministic, one-click export.
- Community zones (Central + Zones 1–5) built into the filters.
Licensed to SCFA — at no cost
On the horizon
🩺 The Nurses Training Program
Next up: activating a dedicated Sickle Cell training experience for nurses — extending the Hub’s education engine to the clinical workforce who care for our families.
Activating soon