360° SCD Hub | Site-Wide Activity

Akilah posted an update: Just wanted to share this document that lays out […]

Tue, 06 Oct 2026 23:49:59 -0700

Just wanted to share this document that lays out the benefits of Community Health Workers and Community Health Leaders in the SCD Community.

It’s all about building relationships and empowering patients! You are NOT alone.

moses-akpan posted an update: With Gratitude and Sincerest Appreciation I accepted […]

Sun, 04 Oct 2026 01:40:54 -0700

With Gratitude and Sincerest Appreciation I accepted the AWARD from the AMERICAN RED CROSS & THE KAPPA ALPHA PSI FRATERNITY CHAMPION-AWARD on September 29th during the Celebration of the LEGACY OF DR. CHARLES DREW.

Akilah posted an update: I want to thank everyone that helped us celebrate […]

Fri, 02 Oct 2026 21:46:00 -0700

I want to thank everyone that helped us celebrate another wonderful Sickle Cell Awareness Month!

I want to send a shout out to Banner, The American Red Cross, Phoenix Children’s Hospital and the Loft Theater for all you did to make this month special.

Pics – Moses rec’d an award at the documentary premier. (I was honored but don’t have pics……

Sue posted an update: We hope you will join us for an evening of education […]

Mon, 28 Sep 2026 13:37:52 -0700

We hope you will join us for an evening of education and engagement at our first Sickle Cell Awareness Month Town Hall.

Akilah posted an update: Join us tonight for our Support and […]

Thu, 24 Sep 2026 21:00:03 -0700

Join us tonight for our Support and Empowerment Meeting

Tonight is about celebrating all the things that make our Warriors who they are.

Whether you are living with Sickle Cell Disease, supporting a loved one, or walking alongside someone in the Sickle Cell community, we want to hear from you!

Come share:

❤️ What your Warrior has accomplished
❤️…

Ediyie recommended the post A New Season, and a Wider Table: Monthly Insights LIVE Returns September 28

Thu, 24 Sep 2026 16:58:59 -0700

moses-akpan posted a new post.

Wed, 23 Sep 2026 21:08:34 -0700

A New Season, and a Wider Table: Monthly Insights LIVE Returns September 28

Season Three of 360° SCD Hub Monthly Insights LIVE opens on Monday, September 28 at 12:00 noon Arizona time — and the hour is built…

Awilda posted an update: The Monthly Insights date and time have been […]

Wed, 23 Sep 2026 16:14:51 -0700

The Monthly Insights date and time have been updated to

Monday, September 28th at 12:00 p.m.

It is posted in the Calendar.

Awilda posted an update: Hello Everyone!We hope you're having a good day.Please […]

Tue, 22 Sep 2026 19:17:59 -0700

Hello Everyone!

We hope you’re having a good day.

Please note that the Monthly Insights Live Virtual Program scheduled for today has been postponed. We will give you another update right here soon.

Thank you for your kind understanding.

Previous Date and Time: On Tuesday, September 22nd from 4:00 to 5:00 PM,

Awilda posted an update: It's that time again to be creative and show your skills!

Mon, 21 Sep 2026 17:01:21 -0700

It’s that time again to be creative and show your skills!
SCFA’s 6th Annual T-shirt Design Contest is here

JOIN THE CONTEST IF YOU OR YOUR FAMILY MEMBER HAVE SICKLE CELL AND YOU ARE REGISTERED TO RECEIVE SERVICES FROM SCFA

CONTACT AKILAH AT 520-527-8988 IF YOU OR YOUR FAMILY MEMBER HAVE SICKLE CELL AND YOU WANT TO RECEIVE SERVICES…

Sue posted an update: Please join us for a virtual town hall on […]

Mon, 21 Sep 2026 14:31:16 -0700

Please join us for a virtual town hall on Wednesday, September 30th at 6:00 PM.

Guest speakers will include:

– Dr. Andres Vasconez Samaniego – speaking about Gene Therapy

– LaRae Morning – sharing her treatment success story

– Dr. Maa-Ohui Quarmyne – providing an update on the SCD program at Phoenix Children’s

And MORE!!!

We hope you will…

phoenixchildrenshospital.zoom.us

Welcome! You are invited to join a webinar: Sickle Cell Awareness Month Town Hall. After registering, you will receive a confirmation email about joining the webinar.

Join us for a VIRTUAL TOWN HALL community event and celebration of Sickle Cell Awareness Month.

Awilda posted an update: This is a free monthly virtual meeting every fourth […]

Wed, 16 Sep 2026 19:58:48 -0700

This is a free monthly virtual meeting every fourth Thursday of the month from 6:30 – 8:00 PM for the Sickle Cell Community we serve and guests. Here we share our experiences, ideas and also invite guest speakers to learn more about topics of interest to you. You can RSVP using the link below. Please share this link with family and friends to…

docs.google.com

RSVP for Monthly SEG Meeting

Fourth Thursday at 6:30p on Zoom

Awilda posted an update: On September 30th from 6:00 to 8:00 PM, the […]

Wed, 16 Sep 2026 19:47:39 -0700

On September 30th from 6:00 to 8:00 PM, the Phoenix Children’s Hospital will host a Virtual Town Hall meeting. The topics are Healthcare Updates, Gene Therapy and more. Registration information will be provided soon.

Awilda posted an update: On September 29th from 4:30 to 6:30 PM, Join us for the […]

Wed, 16 Sep 2026 19:40:44 -0700

On September 29th from 4:30 to 6:30 PM, Join us for the Dr. Charles Drew Movie Screening at the Loft Cinema at 3233 E. Speedway Blvd. The work of Dr. Drew in blood preservation and blood banking transformed healthcare worldwide. After the Movie Screening, Dr. Yvette Miller, who is a national leader in transfusion medicine and public health,…

Awilda posted an update: On Tuesday, September 22nd from 4:00 to 5:00 PM, Join […]

Wed, 16 Sep 2026 18:05:29 -0700

On Tuesday, September 22nd from 4:00 to 5:00 PM, Join Coach Lucy & Dr. Rob LIVE for the Monthly Insights season kickoff — Community Highlights, Member Tips & Inspiration. Streaming on Facebook, YouTube & LinkedIn. After this kickoff, Monthly Insights airs the 3rd Wednesday of every month, 4:00–5:00 PM Arizona (MST). Co-hosted by the Sickle…

Awilda posted an update: The Sickle Cell Foundation of Arizona has expanded its […]

Tue, 15 Sep 2026 17:54:34 -0700

The Sickle Cell Foundation of Arizona has expanded its reach in Arizona through its Regional Network for Sickle Cell Care with a new program titled Blossom Where You Are Planted!

Go to Community Zones within the Community area in this App to learn more.

Awilda shared a post in the group Parents & Family Leaders

Wed, 09 Sep 2026 15:18:58 -0700

Real time data collection to improve the understanding of self care and patient care needs at the time of patient assessments.

SCFA_Coach posted a new post.

1 month ago

FOR IMMEDIATE RELEASE Contact: Moses Akpan, President & Founder, Sickle Cell Foundation of Arizona Email: info@scfa.org · Phone: 520-338-9560 Release date: September 4, 2026 Tucson,…

Awilda shared a post in the group General Community

Wed, 09 Sep 2026 15:18:13 -0700

Real time data collection to improve the understanding of self care and patient care needs at the time of patient assessments.

SCFA_Coach posted a new post.

1 month ago

FOR IMMEDIATE RELEASE Contact: Moses Akpan, President & Founder, Sickle Cell Foundation of Arizona Email: info@scfa.org · Phone: 520-338-9560 Release date: September 4, 2026 Tucson,…

Awilda shared a post in the group Mentorship Group

Wed, 09 Sep 2026 15:17:25 -0700

Real time data collection to improve the understanding of self care and patient care needs at the time of patient assessments.

SCFA_Coach posted a new post.

1 month ago

FOR IMMEDIATE RELEASE Contact: Moses Akpan, President & Founder, Sickle Cell Foundation of Arizona Email: info@scfa.org · Phone: 520-338-9560 Release date: September 4, 2026 Tucson,…

Awilda shared a post in the group Individuals Living with SCD

Wed, 09 Sep 2026 15:15:10 -0700

Real time data collection to improve the understanding of self care and patient care needs at the time of patient assessments.

SCFA_Coach posted a new post.

1 month ago

FOR IMMEDIATE RELEASE Contact: Moses Akpan, President & Founder, Sickle Cell Foundation of Arizona Email: info@scfa.org · Phone: 520-338-9560 Release date: September 4, 2026 Tucson,…

Ediyie recommended the post Sickle Cell Foundation of Arizona Commences the 2026 Sickle Cell Awareness Month With an Upgraded 360° SCD Hub App and Dashboard

Sat, 05 Sep 2026 15:57:51 -0700

SCFA_Coach posted a new post.

Fri, 04 Sep 2026 23:33:42 -0700

Sickle Cell Foundation of Arizona Commences the 2026 Sickle Cell Awareness Month With an Upgraded 360° SCD Hub App and Dashboard

FOR IMMEDIATE RELEASE Contact: Moses Akpan, President & Founder, Sickle Cell Foundation of Arizona Email: in**@**fa.org · Phone: 520-338-9560 Release date: September 4, 2026 Tucson,…

moses-akpan shared a post

Tue, 01 Sep 2026 23:01:02 -0700

Awilda posted an update in the group General Community: We hope you and your families are well.Extraordinary […]

Mon, 31 Aug 2026 20:53:40 -0700

We hope you and your families are well.

Extraordinary strides have been set in motion this year. They include expansion of our Arizona Regional Network For Sickle Cell Care with the new Blossom Where You Are Planted program, improvements made to our App and App website and the development of Pilot projects. Look inside our App and watch for…

Cedric-McKethan posted an update: https://360scdhub.org/?attachment=9087&document_type=document […]

Fri, 21 Aug 2026 02:20:59 -0700

https://360scdhub.org/?attachment=9087&document_type=document&download_document_file=1&document_file=104

Sue posted an update: Registration link coming soon. Mark your calendars for […]

Mon, 17 Aug 2026 13:36:41 -0700

Registration link coming soon.

Mark your calendars for this informative event.

SCFA_Coach posted an update: We've been listening to this all morning and there are […]

Fri, 19 Jun 2026 19:17:57 -0700

We’ve been listening to this all morning and there are some EXCELLENT panels…if you register before 10:00 pm tonight, I’m pretty cerain you’d have access to all the panels. We highly encourage everybody to register, if only to connect to other advicates,families and warriors from across…

events.zoom.us

World Sickle Cell Day 2026

Sue posted an update: Phoenix Children's joins the Sickle Cell […]

Fri, 19 Jun 2026 13:27:14 -0700

Phoenix Children’s joins the Sickle Cell Disease Association of America (SCDAA) in honoring World Sickle Cell Awareness Day – June 19th – through their “Shine the Light” campaign. By “shining a light” on this chronic disease, we hope to raise awareness, promote understanding, and encourage people to learn more about sickle cell and its impact…

Tesiajackson posted an update: Levi is have pain in his right hand. Looking at a pain […]

Sun, 14 Jun 2026 16:06:38 -0700

Levi is have pain in his right hand. Looking at a pain graph he says his pain is between 7-9. – June 14th 9am

moses-akpan posted an update: Empower yourself with knowledge and stay informed about […]

Fri, 08 May 2026 23:34:25 -0700

Empower yourself with knowledge and stay informed about the latest treatments for SCD

lyeishagreer20 posted an update: Hi, I'm Lyeisha, a senior at GCU. I'm working on my […]

Fri, 10 Apr 2026 19:30:33 -0700

Hi, I’m Lyeisha, a senior at GCU. I’m working on my MGT 420 LEADERSHIP PROJECT and need to do a 10-minute Zoom interview with a leader who have served in a managerial capacity for at least 3 years within an organization or department with oversight of at least 10 employees. The leader may be a former or current manager, educational…

Akilah posted a new post.

Tue, 24 Mar 2026 19:41:47 -0700

Akilah posted an update: Join us this Thursday for our March Support and […]

Tue, 24 Mar 2026 19:37:04 -0700

Join us this Thursday for our March Support and Empowerment Meeting at 6:30p.

SCFA has a big announcement for our Arizona families. Don’t miss it!

We look forward to seeing you then!

Please RSVP using the QR Code or the link in the comments

lyeishagreer20 posted an update:

Tue, 17 Feb 2026 20:52:09 -0700

lyeishagreer20 posted an update:

Tue, 17 Feb 2026 20:45:02 -0700

lyeishagreer20 posted an update: My name is Lyeisha, and I am currently an accounting […]

Tue, 17 Feb 2026 18:02:03 -0700

My name is Lyeisha, and I am currently an accounting student at Grand Canyon University and a proud member of the Sickle Cell Foundation of Arizona.

I am passionate about supporting the SCD community, specifically by bridging the gap between financial literacy and patient care. As I approach my graduation in 2026, I am looking to utilize…

lyeishagreer20 recommended the post Cold Matters: Stay Warm if you have SCD

Thu, 12 Feb 2026 00:42:00 -0700

Dr_Rob posted a new post.

Fri, 06 Feb 2026 15:07:42 -0700

Cold Matters: Stay Warm if you have SCD

Transcript
Cold Weather & Sickle Cell: Why Staying Warm Matters
Cold weather isn’t just uncomfortable for people living with sickle cell disease (SCD) — it can be a real…

SCFA_Coach: It’s ALWAYS great to see @Sam_Ross representing the Sickle […]

Fri, 23 Jan 2026 07:23:08 -0700

It’s ALWAYS great to see @Sam_Ross representing the Sickle Cell Foundation of Arizona when Out & About in the Southern Arizona Community as Arizona Achievers Foundation!

#PowerInPartnerships

This was taken on Monday, Jan 19, 2026, celebrating MLK Day at the Demeester Amphitheater at Reid Park when US Congresswoman Adelita Grijalva came up to say…

SCFA_Coach posted a new post.

Fri, 05 Dec 2025 14:56:44 -0700

Sickle Cell Foundation of Arizona 2025 Yearend Recap LIVE Broadcast

You’re Invited! Join Us for the 2025 Yearend Recap Celebration 🎉 Date: December 12, 2025 Time: 1:00 pm – 2:30 pm AZ Time View on any Force…

Brianna B posted an update: Join us tomorrow for our last Support & Empowerment […]

Wed, 29 Oct 2025 23:20:47 -0700

Join us tomorrow for our last Support & Empowerment Group Meeting of 2025! We’d love to hear about your experience in 2025 and what you would like to see in the coming year!

Akilah posted an update: SICKLE CELL FACT OF THE DAY🌟 Warriors are teaching the […]

Mon, 29 Sep 2025 23:22:47 -0700

SICKLE CELL FACT OF THE DAY
🌟 Warriors are teaching the world about resilience, self-care, and compassion in healthcare.
❌ Myth: Everyone with sickle cell experiences the disease the same way.
✅ Fact: Sickle cell looks different for everyone — symptoms and challenges vary widely from warrior to warrior. 🌟

Warriors have to advocate for themselves and…

Akilah posted an update: SICKLE CELL FACT OF THE DAY💡 More sickle cell research […]

Sun, 28 Sep 2025 22:04:38 -0700

SICKLE CELL FACT OF THE DAY
💡 More sickle cell research is happening now than ever before

🧬 Gene therapy is changing the game for sickle cell — offering real hope for a cure.

In December 2023, the FDA approved the first-ever gene therapies for sickle cell disease:
🔹 Casgevy — the first treatment using CRISPR gene editing 🧪
🔹 Lyfgenia — another…

SCFA_Coach: Great to see the SCFA out at the 2nd Annual Health Fair […]

Sat, 20 Sep 2025 18:38:27 -0700

Great to see the SCFA out at the 2nd Annual Health Fair at the historic Dunbar Pavilion in Tucson, Arizona!

Bravo, @Akilah and @Brianna B in the house!

Brianna B posted an update: This Saturday SCFA will be one of many sponsors for […]

Thu, 18 Sep 2025 22:01:30 -0700

This Saturday SCFA will be one of many sponsors for the National Pan-Hellenic Council (NPHC) of Southern Arizona Health & Wellness Expo! A great opportunity to connect with other organizations in the Tucson area and hear from wellness speakers. SCFA will have a table at the event, come and check it out!

More information on the flyer attached!

Akilah posted an update: 🚨 Reminder! 🚨 Our 4th Annual SCFA T-Shirt Design Contest […]

Tue, 16 Sep 2025 23:25:03 -0700

🚨 Reminder! 🚨 Our 4th Annual SCFA T-Shirt Design Contest is LIVE! 🎨👕

Got a powerful idea to spread Sickle Cell Awareness? We want to see it! 🩸❤️

🗓️ Submit by: Sept 24, 2025
📧 Send your original design to:
✉️ members@scfaz.org OR akilah.gilbert@scfaz.org

✨ Winner’s design = this year’s limited edition SCD Awareness tee!

Don’t miss your…

Akilah posted an update: DID YOU KNOW:🌟 Thanks to new treatments, warriors […]

Mon, 15 Sep 2025 18:57:13 -0700

DID YOU KNOW:
🌟 Thanks to new treatments, warriors with sickle cell are living longer, fuller lives than ever before.

The longest-lived documented person with sickle cell disease lived to 95 years (Asiata Onikoyi-Laguda). Other notable cases include several women in their 80s (e.g., aged 81 and 86), supported by proper care and strong…

Sue posted an update: TRANSITION MEET AND GREETCome join us this Saturday for […]

Wed, 27 Aug 2025 13:51:20 -0700

TRANSITION MEET AND GREET

Come join us this Saturday for some fun, a free lunch, and an opportunity to learn about the basics of transitioning from pediatric to adult services.

This event is co-hosted by SCFAZ and Phoenix Children’s.

Sue posted an update: TWO OPPORTUNITIES to learn about TRANSITIONING from […]

Fri, 08 Aug 2025 20:43:42 -0700

TWO OPPORTUNITIES to learn about TRANSITIONING from the pediatric to adult world.

– Monday, August 25th at Phoenix Children’s from 12:00 – 1:00 PM

– Saturday, August 30th at Phoenix Children’s / Conference Center from 11:00 AM – 2:00 PM

We hope to see you at one or both of these informative, fun and interactive events.

Contact Sue…

SCFA_Coach posted an update: This post was from earlier this year, March 2025, but […]

Thu, 31 Jul 2025 17:47:09 -0700

This post was from earlier this year, March 2025, but still worth sharing as a great update from the NIH