360° SCD Hub | Site-Wide Activity https://360scdhub.org/activity-feed/ Activity feed for the entire site. Mon, 13 Apr 2026 21:22:28 -0700 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 e3cf8d75328b627ddc9ff5cff67fa8ea lyeishagreer20 posted an update: Hi, I'm Lyeisha, a senior at GCU. I'm working on my […] https://360scdhub.org/activity-feed/p/1275/ Fri, 10 Apr 2026 19:30:33 -0700 Hi, I’m Lyeisha, a senior at GCU. I’m working on my MGT 420 LEADERSHIP PROJECT and need to do a 10-minute Zoom interview with a leader who have served in a managerial capacity for at least 3 years within an organization or department with oversight of at least 10 employees. The leader may be a former or current manager, educational…

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]]> 0 8d1ceacfe6790205600cad0770116f60 Akilah posted a new event. https://360scdhub.org/?post_type=mec-events&p=7983 Tue, 24 Mar 2026 19:41:47 -0700 0 295eaed00e3af0d1c2f41e846625b085 Akilah posted an update: Join us this Thursday for our March Support and […] https://360scdhub.org/activity-feed/p/1266/ Tue, 24 Mar 2026 19:37:04 -0700 Join us this Thursday for our March Support and Empowerment Meeting at 6:30p.

SCFA has a big announcement for our Arizona families. Don’t miss it!

We look forward to seeing you then!

Please RSVP using the QR Code or the link in the comments

]]> 1 9ea03c26bf7cd0197e37e9abf7327024 lyeishagreer20 posted an update: https://360scdhub.org/activity-feed/p/1265/ Tue, 17 Feb 2026 20:52:09 -0700 0 b8d6f81bbc34a3aeffc6e9d58f1998a0 lyeishagreer20 posted an update: https://360scdhub.org/activity-feed/p/1264/ Tue, 17 Feb 2026 20:45:02 -0700 0 07b14017281e720c04d8b8f3b9ef2eab lyeishagreer20 posted an update: My name is Lyeisha, and I am currently an accounting […] https://360scdhub.org/activity-feed/p/1263/ Tue, 17 Feb 2026 18:02:03 -0700 My name is Lyeisha, and I am currently an accounting student at Grand Canyon University and a proud member of the Sickle Cell Foundation of Arizona.

I am passionate about supporting the SCD community, specifically by bridging the gap between financial literacy and patient care. As I approach my graduation in 2026, I am looking to utilize…

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]]> 2 34e521f3b7a4196138ae00becb791ef3 lyeishagreer20 recommended the post Cold Matters: Stay Warm if you have SCD https://360scdhub.org/activity-feed/p/1262/ Thu, 12 Feb 2026 00:42:00 -0700 0 7dc18d1d06af90016fe4a20591321cf8 Dr. Rob posted a new post. https://360scdhub.org/?p=7960 Fri, 06 Feb 2026 15:07:42 -0700
Cold Matters: Stay Warm if you have SCD

Transcript
Cold Weather & Sickle Cell: Why Staying Warm Matters
Cold weather isn’t just uncomfortable for people living with sickle cell disease (SCD) — it can be a real…

]]> 0 83e9029baa52f667e1a82d579c649319 SCFA_Coach: It’s ALWAYS great to see @Sam_Ross representing the Sickle […] https://360scdhub.org/activity-feed/p/1257/ Fri, 23 Jan 2026 07:23:08 -0700 It’s ALWAYS great to see @Sam_Ross representing the Sickle Cell Foundation of Arizona when Out & About in the Southern Arizona Community as Arizona Achievers Foundation!

#PowerInPartnerships

This was taken on Monday, Jan 19, 2026, celebrating MLK Day at the Demeester Amphitheater at Reid Park when US Congresswoman Adelita Grijalva came up to say…

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]]> 0 f07e4df18350f326b435aea56af71295 SCFA_Coach posted a new event. https://360scdhub.org/?post_type=mec-events&p=7915 Fri, 05 Dec 2025 14:56:44 -0700
Sickle Cell Foundation of Arizona 2025 Yearend Recap LIVE Broadcast

You’re Invited! Join Us for the 2025 Yearend Recap Celebration 🎉 Date: December 12, 2025 Time: 1:00 pm – 2:30 pm AZ Time View on any Force…

]]> 0 3c70420288ebca2c8070fbdaacef70a7 Brianna B posted an update: Join us tomorrow for our last Support & Empowerment […] https://360scdhub.org/activity-feed/p/1247/ Wed, 29 Oct 2025 23:20:47 -0700 Join us tomorrow for our last Support & Empowerment Group Meeting of 2025! We’d love to hear about your experience in 2025 and what you would like to see in the coming year!

]]> 0 1bb89e48d93dba798e0fb385d76b5ff1 Akilah posted an update: SICKLE CELL FACT OF THE DAY🌟 Warriors are teaching the […] https://360scdhub.org/activity-feed/p/1240/ Mon, 29 Sep 2025 23:22:47 -0700 SICKLE CELL FACT OF THE DAY
🌟 Warriors are teaching the world about resilience, self-care, and compassion in healthcare.
❌ Myth: Everyone with sickle cell experiences the disease the same way.
✅ Fact: Sickle cell looks different for everyone — symptoms and challenges vary widely from warrior to warrior. 🌟

Warriors have to advocate for themselves and…

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]]> 0 ac79e1625c6907e25122cfb35a3c5897 Akilah posted an update: SICKLE CELL FACT OF THE DAY💡 More sickle cell research […] https://360scdhub.org/activity-feed/p/1238/ Sun, 28 Sep 2025 22:04:38 -0700 SICKLE CELL FACT OF THE DAY
💡 More sickle cell research is happening now than ever before

🧬 Gene therapy is changing the game for sickle cell — offering real hope for a cure.

In December 2023, the FDA approved the first-ever gene therapies for sickle cell disease:
🔹 Casgevy — the first treatment using CRISPR gene editing 🧪
🔹 Lyfgenia — another…

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]]> 0 f38f56366adbd35b3c4e5d22c12a9426 SCFA_Coach: Great to see the SCFA out at the 2nd Annual Health Fair […] https://360scdhub.org/activity-feed/p/1199/ Sat, 20 Sep 2025 18:38:27 -0700 Great to see the SCFA out at the 2nd Annual Health Fair at the historic Dunbar Pavilion in Tucson, Arizona!

Bravo, @Akilah and @Brianna B in the house!

]]> 1 ab7d38737e98da68ede9c0c404591637 Brianna B posted an update: This Saturday SCFA will be one of many sponsors for […] https://360scdhub.org/activity-feed/p/1198/ Thu, 18 Sep 2025 22:01:30 -0700 This Saturday SCFA will be one of many sponsors for the National Pan-Hellenic Council (NPHC) of Southern Arizona Health & Wellness Expo! A great opportunity to connect with other organizations in the Tucson area and hear from wellness speakers. SCFA will have a table at the event, come and check it out!

More information on the flyer attached!

]]> 0 b3f1cae6949e1585649d9dece59e664f Akilah posted an update: 🚨 Reminder! 🚨 Our 4th Annual SCFA T-Shirt Design Contest […] https://360scdhub.org/activity-feed/p/1194/ Tue, 16 Sep 2025 23:25:03 -0700 🚨 Reminder! 🚨 Our 4th Annual SCFA T-Shirt Design Contest is LIVE! 🎨👕

Got a powerful idea to spread Sickle Cell Awareness? We want to see it! 🩸❤️

🗓️ Submit by: Sept 24, 2025
📧 Send your original design to:
✉️ members@scfaz.org OR akilah.gilbert@scfaz.org

✨ Winner’s design = this year’s limited edition SCD Awareness tee!

Don’t miss your…

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]]> 0 223b28211ab610e5728d03357acf980e Akilah posted an update: DID YOU KNOW:🌟 Thanks to new treatments, warriors […] https://360scdhub.org/activity-feed/p/1193/ Mon, 15 Sep 2025 18:57:13 -0700 DID YOU KNOW:
🌟 Thanks to new treatments, warriors with sickle cell are living longer, fuller lives than ever before.

The longest-lived documented person with sickle cell disease lived to 95 years (Asiata Onikoyi-Laguda). Other notable cases include several women in their 80s (e.g., aged 81 and 86), supported by proper care and strong…

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]]> 0 a486b5e3af67dc1537b1ae633363ff27 Sue posted an update: TRANSITION MEET AND GREETCome join us this Saturday for […] https://360scdhub.org/activity-feed/p/1189/ Wed, 27 Aug 2025 13:51:20 -0700 TRANSITION MEET AND GREET

Come join us this Saturday for some fun, a free lunch, and an opportunity to learn about the basics of transitioning from pediatric to adult services.

This event is co-hosted by SCFAZ and Phoenix Children’s.

Register by Thursday, August 28th.

]]> 0 0fb58a01f659b1fe3d1c4b701c3adc7a Sue posted an update: TWO OPPORTUNITIES to learn about TRANSITIONING from […] https://360scdhub.org/activity-feed/p/1180/ Fri, 08 Aug 2025 20:43:42 -0700 TWO OPPORTUNITIES to learn about TRANSITIONING from the pediatric to adult world.

– Monday, August 25th at Phoenix Children’s from 12:00 – 1:00 PM

– Saturday, August 30th at Phoenix Children’s / Conference Center from 11:00 AM – 2:00 PM

We hope to see you at one or both of these informative, fun and interactive events.

Contact Sue…

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]]> 0 9169ec405a138f5658140053370cb8fa SCFA_Coach posted an update: This post was from earlier this year, March 2025, but […] https://360scdhub.org/activity-feed/p/1179/ Thu, 31 Jul 2025 17:47:09 -0700 This post was from earlier this year, March 2025, but still worth sharing as a great update from the NIH

]]> 0 72df2529b46a4adad7ea59214bcca483 Sue posted an update: Updated ROAD TO TRANSITION flyer with […] https://360scdhub.org/activity-feed/p/1178/ Wed, 23 Jul 2025 14:23:57 -0700 Updated ROAD TO TRANSITION flyer with online registration.

This fun and interactive education session is geared to teens 14-18 years of age who are beginning the journey from teenager to young adult. The purpose of these sessions is to begin the process of making teens aware of what ‘transition’ is, how it will impact their lives once they…

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]]> 0 962bed603c7d597403e1ed43e1420f8e Sue posted an update: Please join us for our second Road to Transition session […] https://360scdhub.org/activity-feed/p/1177/ Tue, 22 Jul 2025 19:42:20 -0700 Please join us for our second Road to Transition session on August 25th.

Registration required and seating is limited for ages 14-18 yo.

Call or email Sue for questions or to sign up. We look forward to seeing you.

You need not have attended the July session in order to join us in August or September.

]]> 0 cf81a2e64f2f8bf61ff6813712f6b78d Moses posted an update: @ https://360scdhub.org/activity-feed/p/1175/ Tue, 22 Jul 2025 01:06:46 -0700 @

]]> 1 934704083841b558c9b7736565186449 David posted an update: Single abd searching https://360scdhub.org/activity-feed/p/1165/ Tue, 08 Jul 2025 04:07:10 -0700 Single abd searching

]]> 0 63673832fa1bc783569531d775020c2d Sue posted an update: We're excited to announce a new FREE educational series […] https://360scdhub.org/activity-feed/p/1157/ Mon, 30 Jun 2025 22:09:31 -0700 We’re excited to announce a new FREE educational series for transition age teens (14-18 years of age). Our goal with this program is to start the education of our teens and young adults for the eventual shift to adult health care and provide them with a “starter kit” to do it with confidence and knowledge when the time comes.

These sessions…

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]]> 1 604b796732838147f949bb7dabbdcdb0 Akilah posted a new event. https://360scdhub.org/events/support-empowerment-group-meeting/ Sat, 21 Jun 2025 03:33:46 -0700 Support & Empowerment Group Meeting

Monthly support group meeting for our warriors, their families and supporters

]]> 0 c48f05380c94c45cc16ec551bd0d3292 SCFA_Coach posted an update: https://360scdhub.org/activity-feed/p/1155/ Thu, 19 Jun 2025 19:09:30 -0700 0 034a0c53aac1dceaf832c5546a836293 SCFA_Coach posted an update: https://360scdhub.org/activity-feed/p/1144/ Thu, 19 Jun 2025 19:08:33 -0700 0 6303aa9a522f31350106075bf1a3c328 SCFA_Coach posted an update: https://360scdhub.org/activity-feed/p/1133/ Thu, 19 Jun 2025 19:07:04 -0700 0 5895e5499168cf3a9f3a28d2858babba SCFA_Coach posted an update: https://360scdhub.org/activity-feed/p/1122/ Thu, 19 Jun 2025 19:04:49 -0700 0 929e0681d57dd22f23410ce161c4f562 SCFA_Coach posted an update: https://360scdhub.org/activity-feed/p/1111/ Thu, 19 Jun 2025 19:03:08 -0700 0 cae86aafeb5418d4fca1ec783b7830ab SCFA_Coach posted an update: https://360scdhub.org/activity-feed/p/1100/ Thu, 19 Jun 2025 19:01:19 -0700 0 f67d401fcd1ecd3b6706b9f7d48a04ca Awilda posted an update: The African American Conference on Disabilities and […] https://360scdhub.org/activity-feed/p/1088/ Tue, 17 Jun 2025 22:44:41 -0700 The African American Conference on Disabilities and Chronic Health Symposium Co-Hosts Renaldo Fowler and Moses Akpan at the Conference on Friday, June 13, 2025.

]]> 0 6b021358cb02cd584f8b62af25215eea Akilah posted a new event. https://360scdhub.org/events/sickle-cell-disease-educational-overview-breakfast/ Tue, 17 Jun 2025 01:46:05 -0700 0 3f7acd960d3faf4c5024214f4950700f Akilah posted an update: 🎉 TUCSON, SCFA INVITES YOU! 🎉 Join us for a FREE breakfast […] https://360scdhub.org/activity-feed/p/1083/ Tue, 17 Jun 2025 00:51:26 -0700 🎉 TUCSON, SCFA INVITES YOU! 🎉
Join us for a FREE breakfast + educational event just for sickle cell warriors and their families ❤️

🗓️ Saturday, June 21, 2025
🥞 Enjoy a warm meal, community connection, and empowering info — all thanks to Vertex’s Patient Educator Program!

🔗 Register here:
https://www.vertexeducators.com/patient-educator-events
➡️…

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]]> 0 2743afd53df19f2e176348fe92e25418 SCFA_Coach posted an update: Huge welcome to new members! https://360scdhub.org/activity-feed/p/1076/ Fri, 13 Jun 2025 18:41:57 -0700 Huge welcome to new members!

]]> 2 58d3767b9a1989a823d66466018d8d4d Joshuabrooks2544 posted an update: Done! https://360scdhub.org/activity-feed/p/1075/ Fri, 13 Jun 2025 18:40:54 -0700 Done!

]]> 2 6845419515082c261bea0b84227d42ad SCFA_Coach posted an update: So happy to see the Sickle Cell Foundation of Arizona […] https://360scdhub.org/activity-feed/p/1067/ Fri, 13 Jun 2025 17:00:32 -0700 So happy to see the Sickle Cell Foundation of Arizona Team leading a Chronic Health Synpisium track with key leaders from across the industry I partnership with Disability Adviacates of Arizona as part of the African American Disabilities 14th Annual Conference in downtown Phoenix.

LOVE seeing collaboration with the AZ DoH staff on table…

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]]> 0 909ae9859c4ddc34a9a27e72d66b862d Sue posted a new post. https://360scdhub.org/?p=7650 Fri, 06 Jun 2025 15:44:06 -0700 SCDC Project - Community Voices
]]> 1 c4e1087da87207fd10430b88149c4289 Sue posted a new post. https://360scdhub.org/?p=7658 Fri, 06 Jun 2025 15:43:18 -0700 SCDC Project - Community Voices
]]> 0 794f546e8cdf7a4bdfd272c96e49c4e6 Sue posted an update: We look forward to co-hosting our first Community […] https://360scdhub.org/activity-feed/p/1060/ Mon, 19 May 2025 18:59:04 -0700 We look forward to co-hosting our first Community Voices Listening Session with SCFAZ on May 22nd at 6:30. Your voice is important to us. We hope you will join us for this open forum meeting.

]]> 0 8dca190f10e0547c811eb62c2839fd13 Sue posted an update: SAVE THE DATE - First SCDC Listening Session is coming […] https://360scdhub.org/activity-feed/p/1057/ Mon, 05 May 2025 17:01:41 -0700 SAVE THE DATE – First SCDC Listening Session is coming on May 22nd.

More details forthcoming as the date approaches. Mark your calendars.

]]> 0 63150adc611c5ab7a5cd1b2bc723ba9f Akilah posted an update: Join us tonight @ 6:30p for our Support & […] https://360scdhub.org/activity-feed/p/1046/ Thu, 24 Apr 2025 21:03:34 -0700 Join us tonight @ 6:30p for our Support & Empowerment Meeting! Hope to see you there. 😊

(Zoom link in the comments)

]]> 1 192bd65bd3dc385476a9380340200814 Mark360SCD: Thank you Red Cross and @Crystal Jackson for hosting […] https://360scdhub.org/activity-feed/p/1041/ Thu, 24 Apr 2025 20:14:21 -0700 Thank you Red Cross and @Crystal Jackson for hosting an amazing brunch a few weekends ago to celebrate, educate and spread awareness on Sickle Cell. Honorable mention to our very own, @moses-akpan and @Ericka_Lassiter for sharing their story!

]]> 1 e2eb3a5d26c7d81638f7ea49b0c9aec8 Dr. Rob posted an update: The local grant announcement is very exciting. […] https://360scdhub.org/activity-feed/p/1038/ Wed, 23 Apr 2025 20:06:09 -0700 The local grant announcement is very exciting.

LaDeirdra Harris is right on target with her grant and vision for helping with respite care by tracking resources, patients and needs. This app can help her help all of us do a better job. I would be glad to discuss resource and respite matching use functions already built into this app.

]]> 3 935142481b4f7dfc6c1a952b85d64d20 Sue posted an update: We are thrilled to have two of our SCD community as part […] https://360scdhub.org/activity-feed/p/1035/ Wed, 23 Apr 2025 19:29:45 -0700 We are thrilled to have two of our SCD community as part of this five-year SCDC grant. Please allow me to introduce LaDeidre Harris and Olufisayo Akinnaso and their stories.

]]> 0 9718f5ed5e656998d9cc09653af4e98f Sue posted an update: WE WANT TO HEAR FROM YOU!Please keep your eyes open […] https://360scdhub.org/activity-feed/p/1033/ Wed, 16 Apr 2025 19:38:46 -0700 WE WANT TO HEAR FROM YOU!

Please keep your eyes open for details about our first Listening Session which will take place in May. Your warrior voice is important to us.

]]> 1 b07d24c8d8f74b6479f1f84de10257d4 Awilda posted an update in the group General Community: Good morning all and Happy Springtime! The two […] https://360scdhub.org/activity-feed/p/1029/ Fri, 11 Apr 2025 15:08:59 -0700 Good morning all and Happy Springtime! The two articles attached and the research sources in each may be of interest to you. Enjoy! Wishing you the very best life can offer, Awilda

]]> 1 764ed087e839cd0085f161ffeb58de1d SCFA_Coach posted a new post. https://360scdhub.org/?p=7584 Tue, 01 Apr 2025 21:09:06 -0700
Celebrating Community, Advocacy, and Innovation in Sickle Cell Disease Care

Event Recap: 2025 SCD Quarterly Community Roundtable – Advancing Together LIVE Broadcast Celebrating Community, Advocacy, and Innovation in Sickle Cell Disease Care On February 28,…

]]> 0 34e952c68b53b77c8dea9567633c1b63 Dr. Rob posted an update: Top 10 Things to Do If You Are Aging with Sickle […] https://360scdhub.org/activity-feed/p/1019/ Fri, 28 Feb 2025 23:01:37 -0700 Top 10 Things to Do If You Are Aging with Sickle Cell Disease

  1. Prioritize Regular Medical Checkups
    • Schedule frequent visits with your hematologist and primary care doctor to monitor organ function, blood counts, and any complications related to aging with SCD.
  2. Manage Pain Effectively
    • Work with your healthcare team to create a comprehensive…

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