360° SCD Hub | Site-Wide Activity https://360scdhub.org/activity-feed/ Activity feed for the entire site. Sat, 15 Aug 2026 10:56:43 -0700 https://buddypress.org/?v=3.4.2 en-US 30 hourly 2 786dad139cce6d157c76b8923676c8de earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1417/ Tue, 11 Aug 2026 15:34:51 -0700 0 1bb35a3cad54564630ed7586cd347654 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1416/ Mon, 10 Aug 2026 17:24:04 -0700 0 d54e27c7f475741fa2c029495eead98e earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1415/ Mon, 10 Aug 2026 17:12:43 -0700 0 8a2cd545fb7cc56aa7569216d550ff77 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1414/ Sun, 09 Aug 2026 19:51:22 -0700 0 020416e2b29bd0349e5314e4fa7ebc4b earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1413/ Sun, 09 Aug 2026 19:50:55 -0700 0 0bd67195a9a92bfff484e81616ee03f9 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1411/ Fri, 07 Aug 2026 17:35:55 -0700 0 ce598d341f83258e2008cada8b6b9c57 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1410/ Fri, 07 Aug 2026 17:34:30 -0700 0 c067bf8f69feafeba0504d71f49aedf7 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1409/ Fri, 07 Aug 2026 14:44:00 -0700 0 3be3c8ade9aca9dcbb0b88fda01cb488 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1408/ Fri, 07 Aug 2026 14:43:54 -0700 0 d708d3a7863a30514b0a1387a3a1fd50 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1407/ Fri, 07 Aug 2026 14:43:35 -0700 0 936b973037c9a072c8e4a912e6fb7ddd earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1406/ Fri, 07 Aug 2026 14:42:36 -0700 0 1e3fb82450959ce1bcb591ad97e7a5ee earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1405/ Fri, 07 Aug 2026 14:42:05 -0700 0 cf9d4f84107f9badf6fd20ef670e06e9 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1404/ Fri, 07 Aug 2026 14:40:39 -0700 0 8839b1985035f1cfe5d286244e7420bd earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1403/ Thu, 06 Aug 2026 21:04:56 -0700 0 bc542c4edcc35e02245b76134dd70c73 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1400/ Mon, 03 Aug 2026 21:40:59 -0700 0 0157f036816ca0102ff082bdf521d09a earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1399/ Mon, 03 Aug 2026 21:40:53 -0700 0 9a2f6f9bf654605b4e4e72be65ef672e earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1398/ Mon, 03 Aug 2026 17:06:12 -0700 0 86e8b1510957d6571494d66511e2edc3 earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1397/ Mon, 03 Aug 2026 17:01:31 -0700 0 e3bc18157ab544e80b5b21a08bf1e3cd earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1396/ Sat, 01 Aug 2026 23:27:52 -0700 0 06156a8ff959f52460d7539dd0dfc6ea earned 10 LEARN It Sickle Sense coins https://360scdhub.org/activity-feed/p/1395/ Sat, 01 Aug 2026 22:44:19 -0700 0 c31012c7a25329879409ee3fe968da04 SCFA_Coach posted an update: We've been listening to this all morning and there are […] https://360scdhub.org/activity-feed/p/1324/ Fri, 19 Jun 2026 19:17:57 -0700 We’ve been listening to this all morning and there are some EXCELLENT panels…if you register before 10:00 pm tonight, I’m pretty cerain you’d have access to all the panels. We highly encourage everybody to register, if only to connect to other advicates,families and warriors from across…

Read more

events.zoom.us

World Sickle Cell Day 2026

World Sickle Cell Day 2026

]]> 0 cace358c5e97a642c194bcf6f740e432 Sue posted an update: Phoenix Children's joins the Sickle Cell […] https://360scdhub.org/activity-feed/p/1321/ Fri, 19 Jun 2026 13:27:14 -0700 Phoenix Children’s joins the Sickle Cell Disease Association of America (SCDAA) in honoring World Sickle Cell Awareness Day – June 19th – through their “Shine the Light” campaign. By “shining a light” on this chronic disease, we hope to raise awareness, promote understanding, and encourage people to learn more about sickle cell and its impact…

Read more

]]> 0 2c6e7a5b5ed974b56a4e95ea4364f43b Tesiajackson posted an update: Levi is have pain in his right hand. Looking at a pain […] https://360scdhub.org/activity-feed/p/1315/ Sun, 14 Jun 2026 16:06:38 -0700 Levi is have pain in his right hand. Looking at a pain graph he says his pain is between 7-9. – June 14th 9am

]]> 0 82d2340fc35937fa2c911822581aad52 Moses posted an update: Empower yourself with knowledge and stay informed about […] https://360scdhub.org/activity-feed/p/1285/ Fri, 08 May 2026 23:34:25 -0700 Empower yourself with knowledge and stay informed about the latest treatments for SCD

]]> 2 e3cf8d75328b627ddc9ff5cff67fa8ea lyeishagreer20 posted an update: Hi, I'm Lyeisha, a senior at GCU. I'm working on my […] https://360scdhub.org/activity-feed/p/1275/ Fri, 10 Apr 2026 19:30:33 -0700 Hi, I’m Lyeisha, a senior at GCU. I’m working on my MGT 420 LEADERSHIP PROJECT and need to do a 10-minute Zoom interview with a leader who have served in a managerial capacity for at least 3 years within an organization or department with oversight of at least 10 employees. The leader may be a former or current manager, educational…

Read more

]]> 2 8d1ceacfe6790205600cad0770116f60 Akilah posted a new post. https://360scdhub.org/activity-feed/p/1268/ Tue, 24 Mar 2026 19:41:47 -0700 0 295eaed00e3af0d1c2f41e846625b085 Akilah posted an update: Join us this Thursday for our March Support and […] https://360scdhub.org/activity-feed/p/1266/ Tue, 24 Mar 2026 19:37:04 -0700 Join us this Thursday for our March Support and Empowerment Meeting at 6:30p.

SCFA has a big announcement for our Arizona families. Don’t miss it!

We look forward to seeing you then!

Please RSVP using the QR Code or the link in the comments

]]> 1 9ea03c26bf7cd0197e37e9abf7327024 lyeishagreer20 posted an update: https://360scdhub.org/activity-feed/p/1265/ Tue, 17 Feb 2026 20:52:09 -0700 0 b8d6f81bbc34a3aeffc6e9d58f1998a0 lyeishagreer20 posted an update: https://360scdhub.org/activity-feed/p/1264/ Tue, 17 Feb 2026 20:45:02 -0700 0 07b14017281e720c04d8b8f3b9ef2eab lyeishagreer20 posted an update: My name is Lyeisha, and I am currently an accounting […] https://360scdhub.org/activity-feed/p/1263/ Tue, 17 Feb 2026 18:02:03 -0700 My name is Lyeisha, and I am currently an accounting student at Grand Canyon University and a proud member of the Sickle Cell Foundation of Arizona.

I am passionate about supporting the SCD community, specifically by bridging the gap between financial literacy and patient care. As I approach my graduation in 2026, I am looking to utilize…

Read more

]]> 2 34e521f3b7a4196138ae00becb791ef3 lyeishagreer20 recommended the post Cold Matters: Stay Warm if you have SCD https://360scdhub.org/activity-feed/p/1262/ Thu, 12 Feb 2026 00:42:00 -0700 0 7dc18d1d06af90016fe4a20591321cf8 Dr. Rob posted a new post. https://360scdhub.org/?p=7960 Fri, 06 Feb 2026 15:07:42 -0700
Cold Matters: Stay Warm if you have SCD

Transcript
Cold Weather & Sickle Cell: Why Staying Warm Matters
Cold weather isn’t just uncomfortable for people living with sickle cell disease (SCD) — it can be a real…

]]> 0 83e9029baa52f667e1a82d579c649319 SCFA_Coach: It’s ALWAYS great to see @Sam_Ross representing the Sickle […] https://360scdhub.org/activity-feed/p/1257/ Fri, 23 Jan 2026 07:23:08 -0700 It’s ALWAYS great to see @Sam_Ross representing the Sickle Cell Foundation of Arizona when Out & About in the Southern Arizona Community as Arizona Achievers Foundation!

#PowerInPartnerships

This was taken on Monday, Jan 19, 2026, celebrating MLK Day at the Demeester Amphitheater at Reid Park when US Congresswoman Adelita Grijalva came up to say…

Read more

]]> 0 f07e4df18350f326b435aea56af71295 SCFA_Coach posted a new post. https://360scdhub.org/activity-feed/p/1252/ Fri, 05 Dec 2025 14:56:44 -0700
Sickle Cell Foundation of Arizona 2025 Yearend Recap LIVE Broadcast

You’re Invited! Join Us for the 2025 Yearend Recap Celebration 🎉 Date: December 12, 2025 Time: 1:00 pm – 2:30 pm AZ Time View on any Force…

]]> 0 3c70420288ebca2c8070fbdaacef70a7 Brianna B posted an update: Join us tomorrow for our last Support & Empowerment […] https://360scdhub.org/activity-feed/p/1247/ Wed, 29 Oct 2025 23:20:47 -0700 Join us tomorrow for our last Support & Empowerment Group Meeting of 2025! We’d love to hear about your experience in 2025 and what you would like to see in the coming year!

]]> 0 1bb89e48d93dba798e0fb385d76b5ff1 Akilah posted an update: SICKLE CELL FACT OF THE DAY🌟 Warriors are teaching the […] https://360scdhub.org/activity-feed/p/1240/ Mon, 29 Sep 2025 23:22:47 -0700 SICKLE CELL FACT OF THE DAY
🌟 Warriors are teaching the world about resilience, self-care, and compassion in healthcare.
❌ Myth: Everyone with sickle cell experiences the disease the same way.
✅ Fact: Sickle cell looks different for everyone — symptoms and challenges vary widely from warrior to warrior. 🌟

Warriors have to advocate for themselves and…

Read more

]]> 0 ac79e1625c6907e25122cfb35a3c5897 Akilah posted an update: SICKLE CELL FACT OF THE DAY💡 More sickle cell research […] https://360scdhub.org/activity-feed/p/1238/ Sun, 28 Sep 2025 22:04:38 -0700 SICKLE CELL FACT OF THE DAY
💡 More sickle cell research is happening now than ever before

🧬 Gene therapy is changing the game for sickle cell — offering real hope for a cure.

In December 2023, the FDA approved the first-ever gene therapies for sickle cell disease:
🔹 Casgevy — the first treatment using CRISPR gene editing 🧪
🔹 Lyfgenia — another…

Read more

]]> 0 f38f56366adbd35b3c4e5d22c12a9426 SCFA_Coach: Great to see the SCFA out at the 2nd Annual Health Fair […] https://360scdhub.org/activity-feed/p/1199/ Sat, 20 Sep 2025 18:38:27 -0700 Great to see the SCFA out at the 2nd Annual Health Fair at the historic Dunbar Pavilion in Tucson, Arizona!

Bravo, @Akilah and @Brianna B in the house!

]]> 1 ab7d38737e98da68ede9c0c404591637 Brianna B posted an update: This Saturday SCFA will be one of many sponsors for […] https://360scdhub.org/activity-feed/p/1198/ Thu, 18 Sep 2025 22:01:30 -0700 This Saturday SCFA will be one of many sponsors for the National Pan-Hellenic Council (NPHC) of Southern Arizona Health & Wellness Expo! A great opportunity to connect with other organizations in the Tucson area and hear from wellness speakers. SCFA will have a table at the event, come and check it out!

More information on the flyer attached!

]]> 0 b3f1cae6949e1585649d9dece59e664f Akilah posted an update: 🚨 Reminder! 🚨 Our 4th Annual SCFA T-Shirt Design Contest […] https://360scdhub.org/activity-feed/p/1194/ Tue, 16 Sep 2025 23:25:03 -0700 🚨 Reminder! 🚨 Our 4th Annual SCFA T-Shirt Design Contest is LIVE! 🎨👕

Got a powerful idea to spread Sickle Cell Awareness? We want to see it! 🩸❤️

🗓️ Submit by: Sept 24, 2025
📧 Send your original design to:
✉️ members@scfaz.org OR akilah.gilbert@scfaz.org

✨ Winner’s design = this year’s limited edition SCD Awareness tee!

Don’t miss your…

Read more

]]> 0 223b28211ab610e5728d03357acf980e Akilah posted an update: DID YOU KNOW:🌟 Thanks to new treatments, warriors […] https://360scdhub.org/activity-feed/p/1193/ Mon, 15 Sep 2025 18:57:13 -0700 DID YOU KNOW:
🌟 Thanks to new treatments, warriors with sickle cell are living longer, fuller lives than ever before.

The longest-lived documented person with sickle cell disease lived to 95 years (Asiata Onikoyi-Laguda). Other notable cases include several women in their 80s (e.g., aged 81 and 86), supported by proper care and strong…

Read more

]]> 0 a486b5e3af67dc1537b1ae633363ff27 Sue posted an update: TRANSITION MEET AND GREETCome join us this Saturday for […] https://360scdhub.org/activity-feed/p/1189/ Wed, 27 Aug 2025 13:51:20 -0700 TRANSITION MEET AND GREET

Come join us this Saturday for some fun, a free lunch, and an opportunity to learn about the basics of transitioning from pediatric to adult services.

This event is co-hosted by SCFAZ and Phoenix Children’s.

Register by Thursday, August 28th.

]]> 0 0fb58a01f659b1fe3d1c4b701c3adc7a Sue posted an update: TWO OPPORTUNITIES to learn about TRANSITIONING from […] https://360scdhub.org/activity-feed/p/1180/ Fri, 08 Aug 2025 20:43:42 -0700 TWO OPPORTUNITIES to learn about TRANSITIONING from the pediatric to adult world.

– Monday, August 25th at Phoenix Children’s from 12:00 – 1:00 PM

– Saturday, August 30th at Phoenix Children’s / Conference Center from 11:00 AM – 2:00 PM

We hope to see you at one or both of these informative, fun and interactive events.

Contact Sue…

Read more

]]> 0 9169ec405a138f5658140053370cb8fa SCFA_Coach posted an update: This post was from earlier this year, March 2025, but […] https://360scdhub.org/activity-feed/p/1179/ Thu, 31 Jul 2025 17:47:09 -0700 This post was from earlier this year, March 2025, but still worth sharing as a great update from the NIH

]]> 0 72df2529b46a4adad7ea59214bcca483 Sue posted an update: Updated ROAD TO TRANSITION flyer with […] https://360scdhub.org/activity-feed/p/1178/ Wed, 23 Jul 2025 14:23:57 -0700 Updated ROAD TO TRANSITION flyer with online registration.

This fun and interactive education session is geared to teens 14-18 years of age who are beginning the journey from teenager to young adult. The purpose of these sessions is to begin the process of making teens aware of what ‘transition’ is, how it will impact their lives once they…

Read more

]]> 0 962bed603c7d597403e1ed43e1420f8e Sue posted an update: Please join us for our second Road to Transition session […] https://360scdhub.org/activity-feed/p/1177/ Tue, 22 Jul 2025 19:42:20 -0700 Please join us for our second Road to Transition session on August 25th.

Registration required and seating is limited for ages 14-18 yo.

Call or email Sue for questions or to sign up. We look forward to seeing you.

You need not have attended the July session in order to join us in August or September.

]]> 0 cf81a2e64f2f8bf61ff6813712f6b78d Moses posted an update: @ https://360scdhub.org/activity-feed/p/1175/ Tue, 22 Jul 2025 01:06:46 -0700 @

]]> 1 934704083841b558c9b7736565186449 David posted an update: Single abd searching https://360scdhub.org/activity-feed/p/1165/ Tue, 08 Jul 2025 04:07:10 -0700 Single abd searching

]]> 0 63673832fa1bc783569531d775020c2d Sue posted an update: We're excited to announce a new FREE educational series […] https://360scdhub.org/activity-feed/p/1157/ Mon, 30 Jun 2025 22:09:31 -0700 We’re excited to announce a new FREE educational series for transition age teens (14-18 years of age). Our goal with this program is to start the education of our teens and young adults for the eventual shift to adult health care and provide them with a “starter kit” to do it with confidence and knowledge when the time comes.

These sessions…

Read more

]]> 1 604b796732838147f949bb7dabbdcdb0 Akilah posted a new post. https://360scdhub.org/activity-feed/p/1156/ Sat, 21 Jun 2025 03:33:46 -0700 Support & Empowerment Group Meeting

Monthly support group meeting for our warriors, their families and supporters

]]> 0