Whether you are living with SCD, from the medical community or the general public, you've come to the right place for education, resources, tools, trackers and support for the Sickle Cell Disease community. We have built this community, app and website for you to join for free.
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Sickle Cell Foundation of Arizona (“SCFA”) (“us”, “we”, or “our”) operates the 360 SCD Hub app and corresponding website, www.360SCDHub.org (the “Service”). This app and site are intended for educational purposes only and should not be considered a medical provider resource. Please consult your own health care provider for specific personal care and directions.
This page informs you of our policies regarding the collection, use, and disclosure of personal data when you use our Service and the choices you have associated with that data.
We use your data to provide and improve the Service. By using the Service, you agree to the collection and use of information in accordance with this policy. Unless otherwise defined in this Privacy Policy, terms used in this Privacy Policy have the same meanings as in our Terms and Conditions, accessible from www.360SCDHub.org/terms-of-conditions.
Information Collection and Use
We collect several different types of information for various purposes to provide and improve our Service to you.
Types of Data Collected
Personal Data
While using our Service, we may ask you to provide us with certain personally identifiable information that can be used to contact or identify you (“Personal Data”). Personally identifiable information may include, but is not limited to:
Usage Data
We may also collect information how the Service is accessed and used (“Usage Data”). This Usage Data will only be used to provide credit for what you’ve earned, such as badges and healthy coins. Any additional utilization of the data will be used to help us understand our user demographic base in a de-identified aggregate manner for utilization summaries to support and improve overall user experience.
User location information collected by the app, but is not stored from it.
Tracking & Cookies Data
We use cookies and similar tracking technologies to track the activity on our Service and hold certain information.
Cookies are files with small amount of data which may include an anonymous unique identifier. Cookies are sent to your browser from a website and stored on your device. Tracking technologies also used are beacons, tags, and scripts to collect and track information and to improve and analyze our Service.
You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. However, if you do not accept cookies, you may not be able to use some portions of our Service.
Examples of Cookies we use:
Use of Data
Sickle Cell Foundation of Arizona (“SCFA”) uses the collected data for various purposes:
Transfer of Data
Your information, including Personal Data, may be transferred to — and maintained on — computers located outside of your state, province, country or other governmental jurisdiction where the data protection laws may differ than those from your jurisdiction.
If you are located outside United States and choose to provide information to us, please note that we transfer the data, including Personal Data, to United States and process it there.
Your consent to this Privacy Policy followed by your submission of such information represents your agreement to that transfer.
Sickle Cell Foundation of Arizona (“SCFA”) will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with this Privacy Policy and no transfer of your Personal Data will take place to an organization or a country unless there are adequate controls in place including the security of your data and other personal information. This app also provides tracker tools that include Personal Health Information (PHI) data, which is fully encrypted at rest and in transit and is fully HIPAA Complaint with it’s technology, policies and procedures in place. Only the unique user will have access to their own data. SCFA will not have access to any personally identifiable PHI data at any time.
Disclosure Of Data
Legal Requirements
Sickle Cell Foundation of Arizona (“SCFA”) will not disclose identifiable Personal Data.
Security Of Data
The security of your data is important to us, but remember that no method of transmission over the Internet, or method of electronic storage is 100% secure. While we strive to use commercially acceptable means to protect your Personal Data, we cannot guarantee its absolute security.
Service Providers
We may employ third party companies and individuals to facilitate our Service (“Service Providers”), to provide the Service on our behalf, to perform Service-related services or to assist us in analyzing how our Service is used.
These third parties may have access to your Personal Data only to perform these tasks on our behalf and are obligated not to disclose or use it for any other purpose.
Links To Other Sites
Our Service may contain links to other sites that are not operated by us. If you click on a third party link, you will be directed to that third party’s site. We strongly advise you to review the Privacy Policy of every site you visit.
We have no control over and assume no responsibility for the content, privacy policies or practices of any third party sites or services.
Children’s Privacy
Our Service is not intended for anyone under the age of 13, unless provided on the parent’s app and with their knowledge.
We do not knowingly collect personally identifiable information from anyone under the age of 13 (children). If you are a parent or guardian and you are aware that your Children has provided us with Personal Data, please contact us. If we become aware that we have collected Personal Data from children without verification of parental consent, we take steps to remove that information from our servers. All children enrolled are done with parental permission and is assumed that they agree with our terms of conditions and privacy policies.
This app is designed to be a free app and at no time will SCFA ever market any product or service through this app to children (under 13).
Changes To This Privacy Policy
We may update our Privacy Policy from time to time. We will notify you of any changes by posting the new Privacy Policy on this page.
We will let you know via email and/or a prominent notice on our Service, prior to the change becoming effective and update the “effective date” at the top of this Privacy Policy.
You are advised to review this Privacy Policy periodically for any changes. Changes to this Privacy Policy are effective when they are posted on this page.
Contact Us
If you have any questions about this Privacy Policy, please contact us:
Effective date: November 22, 2023