360° SCD Hub | Akilah | Activity https://360scdhub.org/members/kilah/activity/ Activity feed for Akilah. Wed, 08 Apr 2026 20:33:10 -0700 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 8d1ceacfe6790205600cad0770116f60 Akilah posted a new event. https://360scdhub.org/?post_type=mec-events&p=7983 Tue, 24 Mar 2026 19:41:47 -0700 0 6cfafb3ab13c34c8ff5a9066777a939f Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/1266/#acomment-1267 Tue, 24 Mar 2026 19:37:35 -0700 https://forms.gle/mYP9BqULuyM7gqPC8

In reply to - Akilah posted an update

Join us this Thursday for our March Support and Empowerment Meeting at 6:30p.

SCFA has a big announcement for our Arizona families. Don’t miss it!

We look forward to seeing you […]

]]> 295eaed00e3af0d1c2f41e846625b085 Akilah posted an update: Join us this Thursday for our March Support and […] https://360scdhub.org/activity-feed/p/1266/ Tue, 24 Mar 2026 19:37:04 -0700 Join us this Thursday for our March Support and Empowerment Meeting at 6:30p.

SCFA has a big announcement for our Arizona families. Don’t miss it!

We look forward to seeing you then!

Please RSVP using the QR Code or the link in the comments

]]> 1 1bb89e48d93dba798e0fb385d76b5ff1 Akilah posted an update: SICKLE CELL FACT OF THE DAY🌟 Warriors are teaching the […] https://360scdhub.org/activity-feed/p/1240/ Mon, 29 Sep 2025 23:22:47 -0700 SICKLE CELL FACT OF THE DAY
🌟 Warriors are teaching the world about resilience, self-care, and compassion in healthcare.
❌ Myth: Everyone with sickle cell experiences the disease the same way.
✅ Fact: Sickle cell looks different for everyone — symptoms and challenges vary widely from warrior to warrior. 🌟

Warriors have to advocate for themselves and…

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]]> 0 837b071823368f56e8327ed79dd1c6d5 Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/1199/#acomment-1239 Sun, 28 Sep 2025 22:25:58 -0700 It was a great event. Thank you NPHC of Southern AZ and Dunbar Pavilion for celebrating Sickle Cell Awareness Month with us!

In reply to - SCFA_Coach to Akilah

Great to see the SCFA out at the 2nd Annual Health Fair at the historic Dunbar Pavilion in Tucson, Arizona!

Bravo, @Akilah and @Brianna B in the house!

]]> ac79e1625c6907e25122cfb35a3c5897 Akilah posted an update: SICKLE CELL FACT OF THE DAY💡 More sickle cell research […] https://360scdhub.org/activity-feed/p/1238/ Sun, 28 Sep 2025 22:04:38 -0700 SICKLE CELL FACT OF THE DAY
💡 More sickle cell research is happening now than ever before

🧬 Gene therapy is changing the game for sickle cell — offering real hope for a cure.

In December 2023, the FDA approved the first-ever gene therapies for sickle cell disease:
🔹 Casgevy — the first treatment using CRISPR gene editing 🧪
🔹 Lyfgenia — another…

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]]> 0 b3f1cae6949e1585649d9dece59e664f Akilah posted an update: 🚨 Reminder! 🚨 Our 4th Annual SCFA T-Shirt Design Contest […] https://360scdhub.org/activity-feed/p/1194/ Tue, 16 Sep 2025 23:25:03 -0700 🚨 Reminder! 🚨 Our 4th Annual SCFA T-Shirt Design Contest is LIVE! 🎨👕

Got a powerful idea to spread Sickle Cell Awareness? We want to see it! 🩸❤️

🗓️ Submit by: Sept 24, 2025
📧 Send your original design to:
✉️ members@scfaz.org OR akilah.gilbert@scfaz.org

✨ Winner’s design = this year’s limited edition SCD Awareness tee!

Don’t miss your…

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]]> 0 223b28211ab610e5728d03357acf980e Akilah posted an update: DID YOU KNOW:🌟 Thanks to new treatments, warriors […] https://360scdhub.org/activity-feed/p/1193/ Mon, 15 Sep 2025 18:57:13 -0700 DID YOU KNOW:
🌟 Thanks to new treatments, warriors with sickle cell are living longer, fuller lives than ever before.

The longest-lived documented person with sickle cell disease lived to 95 years (Asiata Onikoyi-Laguda). Other notable cases include several women in their 80s (e.g., aged 81 and 86), supported by proper care and strong…

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]]> 0 604b796732838147f949bb7dabbdcdb0 Akilah posted a new event. https://360scdhub.org/events/support-empowerment-group-meeting/ Sat, 21 Jun 2025 03:33:46 -0700 Support & Empowerment Group Meeting

Monthly support group meeting for our warriors, their families and supporters

]]> 0 aedfc9f1e6e51b7d8faeae72c797c0d0 Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/1076/#acomment-1085 Tue, 17 Jun 2025 02:07:07 -0700 Welcome everyone! Please reach out if you ever need anything! 😊

In reply to - SCFA_Coach posted an update

Huge welcome to new members!

]]> 6b021358cb02cd584f8b62af25215eea Akilah posted a new event. https://360scdhub.org/events/sickle-cell-disease-educational-overview-breakfast/ Tue, 17 Jun 2025 01:46:05 -0700 0 3f7acd960d3faf4c5024214f4950700f Akilah posted an update: 🎉 TUCSON, SCFA INVITES YOU! 🎉 Join us for a FREE breakfast […] https://360scdhub.org/activity-feed/p/1083/ Tue, 17 Jun 2025 00:51:26 -0700 🎉 TUCSON, SCFA INVITES YOU! 🎉
Join us for a FREE breakfast + educational event just for sickle cell warriors and their families ❤️

🗓️ Saturday, June 21, 2025
🥞 Enjoy a warm meal, community connection, and empowering info — all thanks to Vertex’s Patient Educator Program!

🔗 Register here:
https://www.vertexeducators.com/patient-educator-events
➡️…

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]]> 0 948b031551275b2a56591b70a6c87d5c Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/1046/#acomment-1047 Thu, 24 Apr 2025 21:03:59 -0700 Join Zoom Meeting

https://us06web.zoom.us/j/82367828229?pwd=59bSacHN3i7pah6XtbSuBUYYulgqaR.1

Meeting ID: 823 6782 8229

Passcode: 391050




In reply to - Akilah posted an update

Join us tonight @ 6:30p for our Support & Empowerment Meeting! Hope to see you there. 😊

(Zoom link in the comments)

]]> 63150adc611c5ab7a5cd1b2bc723ba9f Akilah posted an update: Join us tonight @ 6:30p for our Support & […] https://360scdhub.org/activity-feed/p/1046/ Thu, 24 Apr 2025 21:03:34 -0700 Join us tonight @ 6:30p for our Support & Empowerment Meeting! Hope to see you there. 😊

(Zoom link in the comments)

]]> 1 fe28a97eae1e7eedc5fb532923441436 Akilah posted an update: Hey everyone! Make today a great day! You can do it... I […] https://360scdhub.org/activity-feed/p/973/ Tue, 11 Feb 2025 17:08:58 -0700 Hey everyone! Make today a great day! You can do it… I am rooting for you! 😊 (and stay hydrated… it’s getting kinda warm in AZ)

]]> 1 7f921e56d066632511c02b650ed87e10 Akilah posted an update: Highlights from the month of JanuaryMLK Celebration, […] https://360scdhub.org/activity-feed/p/961/ Fri, 07 Feb 2025 21:28:41 -0700 Highlights from the month of January

MLK Celebration, Kappa Alpha Psi fundraiser – Blue in the Night.

]]> 1 d75cc8cec93c16d93981eb12d8820c62 Akilah posted an update: Join us Tonight for our monthly Support & Empowerment […] https://360scdhub.org/activity-feed/p/954/ Thu, 30 Jan 2025 21:23:13 -0700 Join us Tonight for our monthly Support & Empowerment Group Meeting at 6:30p. Message me if you need the Zoom link

]]> 0 a86a69089386151ea639e8562a35df83 Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/913/#acomment-925 Thu, 12 Dec 2024 06:20:45 -0700 @Dr_Rob It’s virtual… I’ll have to send you the email/Zoom link next time. 😊

In reply to - Akilah posted an update

We had a great time at the Support & Empowerment meeting on Friday! It was fun to catch up with the individuals that attended. I’m glad everyone had a great Thanksgiving.

We all learned […]

]]> 56ae96e2b9a1a72323b2f1d987ffb955 Akilah posted an update: We had a great time at the Support & Empowerment meeting […] https://360scdhub.org/activity-feed/p/913/ Tue, 03 Dec 2024 01:48:09 -0700 We had a great time at the Support & Empowerment meeting on Friday! It was fun to catch up with the individuals that attended. I’m glad everyone had a great Thanksgiving.

We all learned a lot about each other and our SCD Warriors. I also shared a tip sheet I created about cold weather readiness – “5 Cold Weather Tips for SCD Warriors”. I am…

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]]> 2 53b26ec89434910ac58a3eaf2304d85f Akilah posted an update in the group General Community: Join us on the 29th for our monthly Support and Empowerment Meeting! https://360scdhub.org/activity-feed/p/899/ Sat, 16 Nov 2024 02:44:48 -0700 Join us on the 29th for our monthly Support and Empowerment Meeting!

]]> 0 e4cb886933f0b3b847038de6a2027783 Akilah posted an update in the group Individuals Living with SCD: Join us on the 29th for our monthly Support and Empowerment Meeting! https://360scdhub.org/activity-feed/p/898/ Sat, 16 Nov 2024 02:42:09 -0700 Join us on the 29th for our monthly Support and Empowerment Meeting!

]]> 0 a039066292416cae9eb245028ff0b287 Akilah posted an update in the group Individuals Living with SCD: TIME 2 VOTE!!It's time to choose the design for our […] https://360scdhub.org/activity-feed/p/865/ Tue, 22 Oct 2024 19:08:39 -0700 TIME 2 VOTE!!

It’s time to choose the design for our limited edition SCFA tshirt.

This year there are 7 designs. Please look at each one before you decide.

To vote: like this post and comment with the number of the design you like.

You can vote again on FB, the Instagram, and email us your choice at members@scfaz.org. You can vote four (4) times.…

Read more

]]> 1 af0b76ca25acbfd8355d0e262e353757 Akilah posted an update: TIME 2 VOTE!!It's time to choose the design for our […] https://360scdhub.org/activity-feed/p/861/ Tue, 22 Oct 2024 19:06:15 -0700 TIME 2 VOTE!!

It’s time to choose the design for our limited edition SCFA tshirt.

This year there are 7 designs. Please look at each one before you decide.

To vote: like this post and comment with the number of the design you like.

You can vote again on FB, the Instagram, and email us your choice at members@scfaz.org. You can vote four (4) times.…

Read more

]]> 4 7eeee0a48ccc516a6e8604eb37c2af86 Akilah posted a new activity comment https://360scdhub.org/a-medical-minute-introducing-sickle-cell-disease-with-dr-rob/#comment-247 Sat, 28 Sep 2024 20:06:46 -0700 b4ee5fc52a970eac1cc4f20c8908db7a Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/752/#acomment-829 Sat, 28 Sep 2024 20:01:03 -0700 I hope you guys have a wonderful day! I’ll join you next time! ❤️

In reply to - Mark360SCD posted an update

FREE MOVIE DAY – PEORIA, ARIZONA

Thank you, SCFAZ.

]]> ad9685807ddce795bd216045ffce56b4 Akilah posted a new event. https://360scdhub.org/events/health-wellness-expo-dunbar-pavilion/ Thu, 29 Aug 2024 06:05:39 -0700
Health & Wellness Expo @ Dunbar Pavilion

Join us at the Health and Wellness Expo at the Dunbar Pavilion Sept 7th. There will be a blood drive and speakers from the community.…

]]> 0 d2f0e5e88485b6ad1d5988c14e56ee4f Akilah posted an update in the group Individuals Living with SCD: Join us on the 29th at 6:30p for our Monthly Support […] https://360scdhub.org/activity-feed/p/723/ Wed, 14 Aug 2024 01:03:28 -0700 Join us on the 29th at 6:30p for our Monthly Support & Empowerment Group Meeting

]]> 0 593637e4277abe5da68683891a4e762f Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/695/#acomment-715 Tue, 13 Aug 2024 04:52:45 -0700 The meeting was great! Our main takeaway – we need volunteers! I have sent out an email with committees that you can join. Please fill out the form and sign up. 🙂

In reply to - Akilah posted an update

IT’S THAT TIME, AGAIN! Join us tomorrow for our monthly Support & Empowerment group meeting! Thursday July 25th at 6:30p. I look forward to seeing you there!

]]> 585ee80cafd45f57cc6b5bee645e58d2 Akilah posted a new event. https://360scdhub.org/events/monthly-support-empowerment-group-meeting/ Tue, 13 Aug 2024 04:41:09 -0700
Monthly Support & Empowerment Group Meeting

Share with the families how you plan to celebrate Sickle Cell Awareness Month and what you and your family are going to do to raise…

]]> 1 06789d78ffbd1b6160499478485b6444 Akilah posted an update: IT'S THAT TIME, AGAIN! Join us tomorrow for our […] https://360scdhub.org/activity-feed/p/695/ Wed, 24 Jul 2024 18:30:45 -0700 IT’S THAT TIME, AGAIN! Join us tomorrow for our monthly Support & Empowerment group meeting! Thursday July 25th at 6:30p. I look forward to seeing you there!

]]> 3 d9239f745fbdf86cacc59ead63354720 Akilah posted an update in the group Individuals Living with SCD: Just checking in with everyone! How are you doing in […] https://360scdhub.org/activity-feed/p/642/ Wed, 10 Jul 2024 05:34:46 -0700 Just checking in with everyone! How are you doing in this weather? Are you keeping cool? Staying hydrated?

I wanna hear from you. Let me know!

]]> 0 4d3c02b74b467b50ee30778a21257bca Akilah posted an update: Join us tomorrow@ 6:30p for our Support & Empowerment […] https://360scdhub.org/activity-feed/p/573/ Wed, 26 Jun 2024 03:54:17 -0700 Join us tomorrow@ 6:30p for our Support & Empowerment Group meeting. Share your story, hear from other families and learn more about our Family Education Conference, happening June 29th & 30th.

]]> 0 6e312407d6bc6fdb02edd63b8bd9abdc Akilah posted an update: Enjoyed the event at Dunbar today! It was great to […] https://360scdhub.org/activity-feed/p/505/ Fri, 07 Jun 2024 22:53:45 -0700 Enjoyed the event at Dunbar today! It was great to learn about the app.

]]> 1 f77aa60493a938256f37340aae3f154b Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/423/#acomment-489 Fri, 07 Jun 2024 22:46:37 -0700 I really enjoyed the event at Dunbar Pavillion today!

In reply to - SCFA_Coach posted an update in the group Community Health Worker BASICS

Check out this blog…what do you think?

https://360scdhub.org/top-20-questions-about-scd



]]> 179bcde2334314e92d5a2daaf97c1945 Akilah posted a new activity comment https://360scdhub.org/scd-glossary-of-terms-to-know/#comment-66 Thu, 28 Mar 2024 00:50:22 -0700 c89200766f313825b950a408fc5c0988 Akilah posted a new activity comment https://360scdhub.org/activity-feed/p/169/#acomment-204 Sat, 27 Jan 2024 04:15:20 -0700 Thank you Dr Rob!

In reply to - Dr. Rob posted an update in the group Individuals Living with SCD

Hi. Here are some thoughts from me on how to best use this tool. I can’t wait to see what gets posted and what discussions occur.

]]>