360° SCD Hub | Awilda | Activity https://360scdhub.org/members/awilda/activity/ Activity feed for Awilda. Sun, 28 Jun 2026 00:24:39 -0700 https://buddypress.org/?v=3.0.5 en-US 30 hourly 2 f67d401fcd1ecd3b6706b9f7d48a04ca Awilda posted an update: The African American Conference on Disabilities and […] https://360scdhub.org/activity-feed/p/1088/ Tue, 17 Jun 2025 22:44:41 -0700 The African American Conference on Disabilities and Chronic Health Symposium Co-Hosts Renaldo Fowler and Moses Akpan at the Conference on Friday, June 13, 2025.

]]> 0 b07d24c8d8f74b6479f1f84de10257d4 Awilda posted an update in the group General Community: Good morning all and Happy Springtime! The two […] https://360scdhub.org/activity-feed/p/1029/ Fri, 11 Apr 2025 15:08:59 -0700 Good morning all and Happy Springtime! The two articles attached and the research sources in each may be of interest to you. Enjoy! Wishing you the very best life can offer, Awilda

]]> 1 e1d073930eeeb939f0448be4aa7771f6 Awilda posted a new post. https://360scdhub.org/activity-feed/p/958/ Fri, 07 Feb 2025 18:55:06 -0700 0 7b079fb10328a37482878dfbf7fdc233 Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/932/#acomment-938 Mon, 23 Dec 2024 17:14:32 -0700 Wishing you a great holiday with your Dad! Safe travels. I look forward to connecting again when you return to Tucson.

In reply to - Awilda to Lthrone @Lthrone

Happy Holidays to you and yours! Thank you for connecting with me. I’m in Tucson, Arizona. Where are you?

]]> 5efb02fe284628821b9b29db342199bb Awilda: @Lthrone Thanks so much for your reply! Have a […] https://360scdhub.org/activity-feed/p/937/ Mon, 23 Dec 2024 17:09:35 -0700 @Lthrone

Thanks so much for your reply! Have a wonderful holiday and safe travels. I look forward to connecting with you when you return.

]]> 0 ee06b0bb991fc85c19a566e8fcd5b1ec Awilda posted an update in the group Medical Community: Residents and supervisors, are you looking for a […] https://360scdhub.org/activity-feed/p/936/ Mon, 23 Dec 2024 16:38:00 -0700 Residents and supervisors, are you looking for a community project? Please contact me if you can join a brainstorming session to develop one that is replicable and a fundraising vehicle? Thank you.

Happy Holidays to all and your families!

]]> 0 7142bb9b5866e8d12482937134253415 Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/929/#acomment-933 Mon, 23 Dec 2024 16:07:15 -0700 There is advocacy available from our partners. Getting others to connect here is a work in progress. The fullest possible impact of this App is yet to come.

Happy Holidays!

In reply to - Awilda posted an update in the group General Community

FYI, in your Profile you can find the section called, “My 360 Charts” where you can privately post what you or your family member is going through to keep […]

]]> 33f8fcfae13e95efa61b20e24759e2eb Awilda: @Lthrone Happy Holidays to you and yours! Thank you […] https://360scdhub.org/activity-feed/p/932/ Mon, 23 Dec 2024 15:49:09 -0700 @Lthrone

Happy Holidays to you and yours! Thank you for connecting with me. I’m in Tucson, Arizona. Where are you?

]]> 3 87941a7fe6d6b35183e59bbaea812b72 Awilda: @Lthrone Happy Holidays to your and yours! Thank you […] https://360scdhub.org/activity-feed/p/931/ Mon, 23 Dec 2024 15:44:27 -0700 @Lthrone

Happy Holidays to your and yours! Thank you for connecting with me. I’m in Tucson, Arizona. Where are you?

]]> 0 155fdea1c57aadca6e3f99a24c012aec Awilda posted an update in the group General Community: FYI, in your Profile you can find the section called, […] https://360scdhub.org/activity-feed/p/929/ Fri, 13 Dec 2024 00:42:57 -0700 FYI, in your Profile you can find the section called, “My 360 Charts” where you can privately post what you or your family member is going through to keep a record. You can share this information with a health care provider at an in-person or video visit. No one else can see what you write unless you share it with them. It’s a safe, fast…

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]]> 2 5112f900be2e41b6788b40f7845810bb Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/697/#acomment-703 Wed, 31 Jul 2024 14:40:53 -0700 A comparable caseload should justify doing so.

In reply to - DrNaomi posted an update in the group Medical Community

Cystic Fibrosis centers are recommended to aim for these FTEs for different providers. I wonder if we can use this to set the same precedent for Sickle Cell centers?

]]> 355c81576da425eb99decfbf68d1b9bb Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/700/#acomment-702 Wed, 31 Jul 2024 13:34:53 -0700 In reply to - Moses posted an update

June and July were extremely busy and very successful months. Thank you everyone who participated and helped us to be so very successful.

The “Difference you Made, Made all the Difference […]
]]> 3a84407d1066392784624b524f9f248e Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/593/#acomment-641 Wed, 10 Jul 2024 02:09:19 -0700 Hi Meganne,

I’m so happy you’re using this App. Enjoy the journey to the many places it will take you! I work at the Sickle Cell Foundation and am learning a lot all the time. One thing I learned is super important is that families with Sickle Cell should have good primary care and a hematologist. I hope you and your family do if that’s what…

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In reply to - Meganne posted an update

I love this app!

]]> fc023003367319a5d9fc6f0a37a99112 Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/596/#acomment-640 Wed, 10 Jul 2024 01:58:02 -0700 Hi Martha,

I’m so glad you were at the conference! I hope you got a lot out of it. I also hope you are enjoying this App. I work at the Sickle Cell Foundation. You can cont us snytime. Take care. Awilda

In reply to - Martha posted an update

Ready to learn at Family engagement Conference!

]]> 375eb004b1c795521ba38bda58b20dd2 Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/603/#acomment-639 Wed, 10 Jul 2024 01:55:14 -0700 Hi Lyeisha,

I’m so happy to see you are using this App. You are a Young Warrior! I started to learn about Sickle Cell in 2022 and I know some people who have it who have shared some of the things that people with Sickle Cell go through. I’m deeply saddened by it, but I m happy to let you know that there are many people working together to make…

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In reply to - lyeishagreer20 posted an update

Hi my name Lyeisha i am 20 and i have sickle cell disease.

]]> 1f8a4df17c30b28b220584194fd6acba Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/610/#acomment-638 Wed, 10 Jul 2024 01:36:09 -0700 Hi Dani,

It’s very good to see you’re using this App where you can find a lot of information about Sickle Cell and resources. I began to learn about Sickle Cell in 2022 and found out that Hispanics also can have Sickle Cell. No family member of mine has ever said they have it, so I’m going to send them the App information just in case they…

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In reply to - dani posted an update

I’m here! My son has sickle cell as well! Let’s connect!

]]> 1a18d4cdb7ec28c97af9f03112c200f5 Awilda posted a new activity comment https://360scdhub.org/activity-feed/p/611/#acomment-636 Mon, 08 Jul 2024 14:29:49 -0700 Hello Victoria,

It’s great to hear from you. I wasn’t aware of these syndromes, but I can relate to migraines which can be debilitating at varying degrees. If you aren’t already doing so, I suggest you consider using the Tracker where you can privately post what you are experiencing, which will also show up in your Chart that you can then take…

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In reply to - victoriabangerter posted an update

My name is Victoria I have Platelet disorder collagen 1um cryo-pyrene associated periodic syndrome Ehlers Danlos syndrome Larson syndrome hemiplegic, migraines and […]

]]> 854d4e79da8004184138c4a94884fde2 Awilda became a registered member https://360scdhub.org/activity-feed/p/160/ Tue, 23 Jan 2024 20:15:25 -0700 0