Whether you are living with SCD, from the medical community or the general public, you've come to the right place for education, resources, tools, trackers and support for the Sickle Cell Disease community. We have built this community, app and website for you to join for free.
Please login to access this website.
Terms and Conditions: 360SCDHub App and Site
Welcome to the 360SCDHub app and corresponding website, www.360SCDHub.org. The 360SCDHub app and site (the “App and site”) is comprised of an app and associated web pages operated by The Sickle Cell Foundation of Arizona, Inc. (“SCFA ”). These are offered to you conditioned on your acceptance without modification of the terms, conditions, and notices contained herein (the “Terms”). Your use of the app and site constitutes your agreement to all such Terms. Please read these terms carefully, and keep a copy of them for your reference.
The 360SCDHub app and site have been developed as to be a resource for the Sickle Cell community and is designed to provide education, resources, tools, trackers and on-line communities to support patients, families caregivers and the general community. This is for educational purposes and is not intended to replace or to be used as personal medical care. It should be used to connect and support members interested in learning more about Sickle Cell disease and associated care.
Privacy
Your use of the 360SCDHub app and site www.360SCDHub.org is subject to SCFA’s Privacy Policy for the 360SCDHub app and site. Please review our Privacy Policy, which also governs the App and site and informs users of our data collection practices.
Electronic Communications
Using the app or visiting www.360SCDHub.org or sending notifications to 360SCDHub constitutes electronic communications. You consent to receive electronic communications and you agree that all agreements, notices, disclosures and other communications that we provide to you electronically, via email and on the App and site, satisfy any legal requirement that such communications be in writing.
Your Account
If you use this app and site, you are responsible for maintaining the confidentiality of your account and password and for restricting access to your computer, and you agree to accept responsibility for all activities that occur under your account or password. You may not assign or otherwise transfer your account to any other person or entity. You acknowledge that SCFA is not responsible for third party access to your account that results from theft or misappropriation of your account. SCFA and its associates reserve the right to refuse or cancel service, terminate accounts, or remove or edit content in our sole discretion.
Children Under Thirteen
SCFA does not knowingly collect, either online or offline, personal information from persons under the age of thirteen. If you are under 18, you may use the app or site only with permission of a parent or guardian.
Cancellation/Refund Policy
You may cancel your account at any time. Since this is a free service, there are no refunds that would apply. Please contact us at su*****@36*******.org with any questions.
Links to Third Party App and sites/Third Party Services
App and site may contain links to other web app and sites (“Linked App and sites”). The Linked App and sites are not under the control of SCFA and SCFA is not responsible for the contents of any Linked App and site, including without limitation any link contained in a Linked App and site, or any changes or updates to a Linked App and site. SCFA is providing these links to you only as a convenience, and the inclusion of any link does not imply endorsement by SCFA of the app and site or any association with its operators.
Certain services made available via www.360SCDHub.org are delivered by third party app and sites and organizations. By using any product, service or functionality originating from the app or site, you hereby acknowledge and consent that SCFA may share such information and data with any third party with whom SCFA has a contractual relationship to provide the requested product, service or functionality on behalf of 360SCDHub users.
No Unlawful or Prohibited Use/Intellectual Property
You are granted a non-exclusive, non-transferable, revocable license to access and use app and site strictly in accordance with these terms of use. As a condition of your use of the App and site, you warrant to SCFA that you will not use the App and site for any purpose that is unlawful or prohibited by these Terms. You may not use the App and site in any manner which could damage, disable, overburden, or impair the App and site or interfere with any other party’s use and enjoyment of the App and site. You may not obtain or attempt to obtain any materials or information through any means not intentionally made available or provided for through the App and site.
All content included as part of the Service, such as text, graphics, logos, images, as well as the compilation thereof, and any software used on the App and site, is the property of SCFA or its suppliers and protected by copyright and other laws that protect intellectual property and proprietary rights. You agree to observe and abide by all copyright and other proprietary notices, legends or other restrictions contained in any such content and will not make any changes thereto.
You will not modify, publish, transmit, reverse engineer, participate in the transfer or sale, create derivative works, or in any way exploit any of the content, in whole or in part, found on the App and site. SCFA content is not for resale. Your use of the App and site does not entitle you to make any unauthorized use of any protected content, and in particular you will not delete or alter any proprietary rights or attribution notices in any content. You will use protected content solely for your personal use, and will make no other use of the content without the express written permission of SCFA and the copyright owner. You agree that you do not acquire any ownership rights in any protected content. We do not grant you any licenses, express or implied, to the intellectual property of SCFA or our licensors except as expressly authorized by these Terms.
Use of Communication Services
The App and site may contain bulletin board services, chat areas, news groups, forums, communities, personal web pages, calendars, and/or other message or communication facilities designed to enable you to communicate with the public at large or with a group (collectively, “Communication Services”). You agree to use the Communication Services only to post, send and receive messages and material that are proper and related to the particular Communication Service.
By way of example, and not as a limitation, you agree that when using a Communication Service, you will not: defame, abuse, harass, stalk, threaten or otherwise violate the legal rights (such as rights of privacy and publicity) of others; publish, post, upload, distribute or disseminate any inappropriate, profane, defamatory, infringing, obscene, indecent or unlawful topic, name, material or information; upload files that contain software or other material protected by intellectual property laws (or by rights of privacy of publicity) unless you own or control the rights thereto or have received all necessary consents; upload files that contain viruses, corrupted files, or any other similar software or programs that may damage the operation of another’s computer; advertise or offer to sell or buy any goods or services for any business purpose, unless such Communication Service specifically allows such messages; conduct or forward surveys, contests, pyramid schemes or chain letters; download any file posted by another user of a Communication Service that you know, or reasonably should know, cannot be legally distributed in such manner; falsify or delete any author attributions, legal or other proper notices or proprietary designations or labels of the origin or source of software or other material contained in a file that is uploaded; restrict or inhibit any other user from using and enjoying the Communication Services; violate any code of conduct or other guidelines which may be applicable for any particular Communication Service; harvest or otherwise collect information about others, including e-mail addresses, without their consent; violate any applicable laws or regulations.
SCFA has no obligation to monitor the Communication Services. However, SCFA reserves the right to review materials posted to a Communication Service and to remove any materials in its sole discretion. SCFA reserves the right to terminate your access to any or all of the Communication Services at any time without notice for any reason whatsoever.
SCFA reserves the right at all times to disclose any information as necessary to satisfy any applicable law, regulation, legal process or governmental request, or to edit, refuse to post or to remove any information or materials, in whole or in part, in SCFA ’s sole discretion.
Always use caution when giving out any personally identifying information about yourself or your children in any Communication Service. SCFA does not control or endorse the content, messages or information found in any Communication Service and, therefore, SCFA specifically disclaims any liability with regard to the Communication Services and any actions resulting from your participation in any Communication Service. Managers and hosts are not authorized SCFA spokespersons, and their views do not necessarily reflect those of SCFA.
Materials uploaded to a Communication Service may be subject to posted limitations on usage, reproduction and/or dissemination. You are responsible for adhering to such limitations if you upload the materials.
Materials Provided to or Posted on app or site
SCFA does not claim ownership of the materials you provide to app or site (including feedback and suggestions) or post, upload, input or submit to any SCFA App and site or our associated services (collectively “Submissions”). However, by posting, uploading, inputting, providing or submitting your Submission you are granting SCFA, our affiliated companies and necessary sub-licensees permission to use your Submission in connection with the operation of their Internet businesses including, without limitation, the rights to: copy, distribute, transmit, publicly display, publicly perform, reproduce, edit, translate and reformat your Submission; and to publish your name in connection with your Submission, depending on user preferences and privacy settings.
No compensation will be paid with respect to the use of your Submission, as provided herein. SCFA is under no obligation to post or use any Submission you may provide and may remove any Submission at any time in SCFA ’s sole discretion.
By posting, uploading, inputting, providing or submitting your Submission you warrant and represent that you own or otherwise control all of the rights to your Submission as described in this section including, without limitation, all the rights necessary for you to provide, post, upload, input or submit the Submissions.
Third Party Accounts
You will be able to connect your SCFA account to third party accounts. By connecting your SCFA account to your third party account, you acknowledge and agree that you are consenting to the continuous release of information about you to others (in accordance with your privacy settings on those third party app and sites). If you do not want information about you to be shared in this manner, do not use this feature.
International Users
The Service is controlled, operated and administered by SCFA from our offices within the USA. If you access the Service from a location outside the USA, you are responsible for compliance with all local laws. You agree that you will not use the SCFA Content accessed through app or site in any country or in any manner prohibited by any applicable laws, restrictions or regulations.
Indemnification
You agree to indemnify, defend and hold harmless SCFA, its officers, directors, employees, agents and third parties, for any losses, costs, liabilities and expenses (including reasonable attorney’s fees) relating to or arising out of your use of or inability to use the App and site or services, any user postings made by you, your violation of any terms of this Agreement or your violation of any rights of a third party, or your violation of any applicable laws, rules or regulations. SCFA reserves the right, at its own cost, to assume the exclusive defense and control of any matter otherwise subject to indemnification by you, in which event you will fully cooperate with SCFA in asserting any available defenses.
Arbitration
In the event the parties are not able to resolve any dispute between them arising out of or concerning these Terms and Conditions, or any provisions hereof, whether in contract, tort, or otherwise at law or in equity for damages or any other relief, then such dispute shall be resolved only by final and binding arbitration pursuant to the Federal Arbitration Act, conducted by a single neutral arbitrator and administered by the American Arbitration Association, or a similar arbitration service selected by the parties, in a location mutually agreed upon by the parties. The arbitrator’s award shall be final, and judgment may be entered upon it in any court having jurisdiction. In the event that any legal or equitable action, proceeding or arbitration arises out of or concerns these Terms and Conditions, the prevailing party shall be entitled to recover its costs and reasonable attorney’s fees. The parties agree to arbitrate all disputes and claims in regards to these Terms and Conditions or any disputes arising as a result of these Terms and Conditions, whether directly or indirectly, including Tort claims that are a result of these Terms and Conditions. The parties agree that the Federal Arbitration Act governs the interpretation and enforcement of this provision. The entire dispute, including the scope and enforceability of this arbitration provision shall be determined by the Arbitrator. This arbitration provision shall survive the termination of these Terms and Conditions.
Class Action Waiver
Any arbitration under these Terms and Conditions will take place on an individual basis; class arbitrations and class/representative/collective actions are not permitted. The parties agree that a party may bring claims against the other only in each’s individual capacity, and not as a plaintiff or class member in any putative class, collective and/ or representative proceeding, such as in the form of a private attorney general action against the other. Further, unless both you and SCFA agree otherwise, the arbitrator may not consolidate more than one person’s claims, and may not otherwise preside over any form of a representative or class proceeding.
Liability Disclaimer
The information, software, products, and services included in or available through the app and site may include inaccuracies or typographical errors. Changes are periodically added to the information herein. SCFA and/or its suppliers may make improvements and/or changes in the app and site at any time.
SCFA and/or its suppliers make no representations about the suitability, reliability, availability, timeliness, and accuracy of the information, software, products, services and related graphics contained on the app and site for any purpose. To the maximum extent permitted by applicable law, all such information, software, products, services and related graphics are provided “as is” without warranty or condition of any kind. The SCFA and/or its suppliers hereby disclaim all warranties and conditions with regard to this information, software, products, services and related graphics, including all implied warranties or conditions of merchantability, fitness for a particular purpose, title and non-infringement.
To the maximum extent permitted by applicable law, in no event shall SCFA and/or its suppliers be liable for any direct, indirect, punitive, incidental, special, consequential damages or any damages whatsoever including, without limitation, damages for loss of use, data or profits, arising out of or in any way connected with the use or performance of the app and site, with the delay or inability to use the app and site or related services, the provision of or failure to provide services, or for any information, software, products, services and related graphics obtained through the app and site, or otherwise arising out of the use of the app and site, whether based on contract, tort, negligence, strict liability or otherwise, even if the SCFAZ or any of its suppliers has been advised of the possibility of damages. because some states/jurisdictions do not allow the exclusion or limitation of liability for consequential or incidental damages, the above limitation may not apply to you. If you are dissatisfied with any portion of the app and site, or with any of these terms of use, your sole and exclusive remedy is to discontinue using the app and site.
Termination/Access Restriction
SCFAZ reserves the right, in its sole discretion, to terminate your access to the app and site and the related services or any portion thereof at any time, without notice. To the maximum extent permitted by law, this agreement is governed by American Arbitration Association as stated in Arbitration paragraph above for all disputes arising out of or relating to the use of the App and site. Use of the App and site is unauthorized in any jurisdiction that does not give effect to all provisions of these Terms, including, without limitation, this section.
You agree that no joint venture, partnership, employment, or agency relationship exists between you and SCFA as a result of this agreement or use of the App and site. SCFA’s performance of this agreement is subject to existing laws and legal process, and nothing contained in this agreement is in derogation of SCFA’s right to comply with governmental, court and law enforcement requests or requirements relating to your use of the App and site or information provided to or gathered by SCFA with respect to such use. If any part of this agreement is determined to be invalid or unenforceable pursuant to applicable law including, but not limited to, the warranty disclaimers and liability limitations set forth above, then the invalid or unenforceable provision will be deemed superseded by a valid, enforceable provision that most closely matches the intent of the original provision and the remainder of the agreement shall continue in effect.
Unless otherwise specified herein, this agreement constitutes the entire agreement between the user and SCFA with respect to the App and site and it supersedes all prior or contemporaneous communications and proposals, whether electronic, oral or written, between the user and SCFA with respect to the App and site. A printed version of this agreement and of any notice given in electronic form shall be admissible in judicial or administrative proceedings based upon or relating to this agreement to the same extent and subject to the same conditions as other business documents and records originally generated and maintained in printed form. It is the express wish to the parties that this agreement and all related documents be written in English.
Changes to Terms
SCFA reserves the right, in its sole discretion, to change the Terms under which the app and site is offered. The most current version of the Terms will supersede all previous versions. SCFA encourages you to periodically review the Terms to stay informed of our updates.
Contact Us
SCFA welcomes your questions or comments regarding the Terms:
The Sickle Cell Foundation of Arizona, Inc
PO Box 26362, Tucson, Arizona Tucson, Arizona 85752
Email Address: su*****@sc***.org
Effective as of November 22, 2023
Sickle Cell Foundation of Arizona (“SCFA”) (“us”, “we”, or “our”) operates the 360 SCD Hub app and corresponding website, www.360SCDHub.org (the “Service”). This app and site are intended for educational purposes only and should not be considered a medical provider resource. Please consult your own health care provider for specific personal care and directions.
This page informs you of our policies regarding the collection, use, and disclosure of personal data when you use our Service and the choices you have associated with that data.
We use your data to provide and improve the Service. By using the Service, you agree to the collection and use of information in accordance with this policy. Unless otherwise defined in this Privacy Policy, terms used in this Privacy Policy have the same meanings as in our Terms and Conditions, accessible from www.360SCDHub.org/terms-of-conditions.
Information Collection and Use
We collect several different types of information for various purposes to provide and improve our Service to you.
Types of Data Collected
Personal Data
While using our Service, we may ask you to provide us with certain personally identifiable information that can be used to contact or identify you (“Personal Data”). Personally identifiable information may include, but is not limited to:
Usage Data
We may also collect information how the Service is accessed and used (“Usage Data”). This Usage Data will only be used to provide credit for what you’ve earned, such as badges and healthy coins. Any additional utilization of the data will be used to help us understand our user demographic base in a de-identified aggregate manner for utilization summaries to support and improve overall user experience.
User location information collected by the app, but is not stored from it.
Tracking & Cookies Data
We use cookies and similar tracking technologies to track the activity on our Service and hold certain information.
Cookies are files with small amount of data which may include an anonymous unique identifier. Cookies are sent to your browser from a website and stored on your device. Tracking technologies also used are beacons, tags, and scripts to collect and track information and to improve and analyze our Service.
You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. However, if you do not accept cookies, you may not be able to use some portions of our Service.
Examples of Cookies we use:
Use of Data
Sickle Cell Foundation of Arizona (“SCFA”) uses the collected data for various purposes:
Transfer of Data
Your information, including Personal Data, may be transferred to — and maintained on — computers located outside of your state, province, country or other governmental jurisdiction where the data protection laws may differ than those from your jurisdiction.
If you are located outside United States and choose to provide information to us, please note that we transfer the data, including Personal Data, to United States and process it there.
Your consent to this Privacy Policy followed by your submission of such information represents your agreement to that transfer.
Sickle Cell Foundation of Arizona (“SCFA”) will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with this Privacy Policy and no transfer of your Personal Data will take place to an organization or a country unless there are adequate controls in place including the security of your data and other personal information. This app also provides tracker tools that include Personal Health Information (PHI) data, which is fully encrypted at rest and in transit and is fully HIPAA Complaint with it’s technology, policies and procedures in place. Only the unique user will have access to their own data. SCFA will not have access to any personally identifiable PHI data at any time.
Disclosure Of Data
Legal Requirements
Sickle Cell Foundation of Arizona (“SCFA”) will not disclose identifiable Personal Data.
Security Of Data
The security of your data is important to us, but remember that no method of transmission over the Internet, or method of electronic storage is 100% secure. While we strive to use commercially acceptable means to protect your Personal Data, we cannot guarantee its absolute security.
Service Providers
We may employ third party companies and individuals to facilitate our Service (“Service Providers”), to provide the Service on our behalf, to perform Service-related services or to assist us in analyzing how our Service is used.
These third parties may have access to your Personal Data only to perform these tasks on our behalf and are obligated not to disclose or use it for any other purpose.
Links To Other Sites
Our Service may contain links to other sites that are not operated by us. If you click on a third party link, you will be directed to that third party’s site. We strongly advise you to review the Privacy Policy of every site you visit.
We have no control over and assume no responsibility for the content, privacy policies or practices of any third party sites or services.
Children’s Privacy
Our Service is not intended for anyone under the age of 13, unless provided on the parent’s app and with their knowledge.
We do not knowingly collect personally identifiable information from anyone under the age of 13 (children). If you are a parent or guardian and you are aware that your Children has provided us with Personal Data, please contact us. If we become aware that we have collected Personal Data from children without verification of parental consent, we take steps to remove that information from our servers. All children enrolled are done with parental permission and is assumed that they agree with our terms of conditions and privacy policies.
This app is designed to be a free app and at no time will SCFA ever market any product or service through this app to children (under 13).
Changes To This Privacy Policy
We may update our Privacy Policy from time to time. We will notify you of any changes by posting the new Privacy Policy on this page.
We will let you know via email and/or a prominent notice on our Service, prior to the change becoming effective and update the “effective date” at the top of this Privacy Policy.
You are advised to review this Privacy Policy periodically for any changes. Changes to this Privacy Policy are effective when they are posted on this page.
Contact Us
If you have any questions about this Privacy Policy, please contact us:
Effective date: November 22, 2023