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	<title>360° SCD Hub | General Community | Activity</title>
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				<title>Awilda shared a post in the group General Community</title>
				<link>https://360scdhub.org/activity-feed/p/1485/</link>
				<pubDate>Wed, 09 Sep 2026 15:18:13 -0700</pubDate>

									<content:encoded><![CDATA[<p>Real time data collection to improve the understanding of self care and patient care needs at the time of patient assessments.</p>


<div class="shared-activity-wrapper" data-activity-id="1478"><div class="shared-activity-preview" data-activity-id="1478"><div class="shared-activity-header"><div class="shared-activity-avatar"><img alt='' src='https://da973f9zbg0w5.cloudfront.net/wp-content/uploads/avatars/1/64da06386732e-bpthumb.png' srcset='https://da973f9zbg0w5.cloudfront.net/wp-content/uploads/avatars/1/64da06386732e-bpthumb.png 2x' class='avatar avatar-40 photo' height='40' width='40' /></div><div class="shared-activity-meta"><div class="shared-activity-author"><a href="https://360scdhub.org/members/sickle-cell-foundation-of-arizona/" data-bb-hp-profile="1">SCFA_Coach</a> posted a new post.</div><div class="shared-activity-time">2 months ago</div></div></div><div class="shared-activity-content"><p>FOR IMMEDIATE RELEASE Contact: Moses Akpan, President &amp; Founder, Sickle Cell Foundation of Arizona Email: info@scfa.org · Phone: 520-338-9560 Release date: September 4, 2026 Tucson,…</p>
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				<title>Awilda posted an update in the group General Community: We hope you and your families are well.Extraordinary [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1453/</link>
				<pubDate>Mon, 31 Aug 2026 20:53:40 -0700</pubDate>

									<content:encoded><![CDATA[<p>We hope you and your families are well.</p>
</p>
<p>Extraordinary strides have been set in motion this year. They include expansion of our Arizona Regional Network For Sickle Cell Care with the new Blossom Where You Are Planted program, improvements made to our App and App website and the development of Pilot projects. Look inside our App and watch for&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-1453"><a href="https://360scdhub.org/activity-feed/p/1453/" rel="nofollow"> Read more</a></span></p>
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				<title>Awilda posted an update in the group General Community: Good morning all and Happy Springtime! The two [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1029/</link>
				<pubDate>Fri, 11 Apr 2025 15:08:59 -0700</pubDate>

									<content:encoded><![CDATA[<p>Good morning all and Happy Springtime! The two articles attached and the research sources in each may be of interest to you. Enjoy! Wishing you the very best life can offer, Awilda </p>
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				<title>moses-akpan posted an update in the group General Community: Something for all of us to think about in the mist of [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1009/</link>
				<pubDate>Tue, 18 Feb 2025 16:12:30 -0700</pubDate>

									<content:encoded><![CDATA[<p>Something for all of us to think about in the mist of our busy lives &#8211; Watch and enjoy!</p>
<p><a target='_blank' href="https://www.youtube.com/watch?v=yPNBwFctCu4&#038;list=PL_ntiNjc6GvnWVCoDo40liUaM1G_yM_5T&#038;index=2SCD" rel="nofollow">https://www.youtube.com/watch?v=yPNBwFctCu4&#038;list=PL_ntiNjc6GvnWVCoDo40liUaM1G_yM_5T&#038;index=2SCD</a> Brochure for the Community. In Partnership ADHS we distributeds this brochure at a number of events including Blood Drive.</p>
<p><iframe class="lazy" title="Taking Care of Our Hearts to Build Heart-Healthy Communities" width="640" height="360"  data-lazy-type="iframe" data-src="https://www.youtube.com/embed/yPNBwFctCu4?feature=oembed" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" referrerpolicy="strict-origin-when-cross-origin" allowfullscreen></iframe></p>
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				<title>Awilda posted an update in the group General Community: FYI, in your Profile you can find the section called, [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/929/</link>
				<pubDate>Fri, 13 Dec 2024 00:42:57 -0700</pubDate>

									<content:encoded><![CDATA[<p>FYI, in your Profile you can find the section called, &#8220;My 360 Charts&#8221; where you can privately post what you or your family member is going through to keep a record. You can share this information with a health care provider at an in-person or video visit. No one else can see what you write unless you share it with them. It&#8217;s a safe, fast&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-929"><a href="https://360scdhub.org/activity-feed/p/929/" rel="nofollow"> Read more</a></span></p>
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				<title>Akilah posted an update in the group General Community: Join us on the 29th for our monthly Support and Empowerment Meeting!</title>
				<link>https://360scdhub.org/activity-feed/p/899/</link>
				<pubDate>Sat, 16 Nov 2024 02:44:48 -0700</pubDate>

									<content:encoded><![CDATA[<p>Join us on the 29th for our monthly Support and Empowerment Meeting!</p>
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				<title>SCFA_Coach added event "Advancing Sickle Cell Arizona Community Roundtable - Fall 2024" to the group General Community</title>
				<link>https://360scdhub.org/activity-feed/p/769/</link>
				<pubDate>Mon, 16 Sep 2024 22:33:53 -0700</pubDate>

				
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				<title>SCFA_Coach added event "360° SCD Hub Monthly Insights LIVE Broadcast: July S1 E4" to the group General Community</title>
				<link>https://360scdhub.org/activity-feed/p/634/</link>
				<pubDate>Sun, 07 Jul 2024 06:17:40 -0700</pubDate>

				
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				<title>moses-akpan posted an update in the group General Community: </title>
				<link>https://360scdhub.org/activity-feed/p/316/</link>
				<pubDate>Mon, 18 Mar 2024 14:17:03 -0700</pubDate>

				
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				<title>Dr_Rob posted an update in the group General Community: Hi.  Here are some thoughts from me on how to best use [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/173/</link>
				<pubDate>Wed, 24 Jan 2024 20:08:10 -0700</pubDate>

									<content:encoded><![CDATA[<p>Hi.  Here are some thoughts from me on how to best use this tool.  I can&#8217;t wait to see what gets posted and what discussions occur. </p>
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