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	<title>360° SCD Hub | Parents & Family Leaders | Activity</title>
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				<title>Awilda shared a post in the group Parents &#38; Family Leaders</title>
				<link>https://360scdhub.org/activity-feed/p/1486/</link>
				<pubDate>Wed, 09 Sep 2026 15:18:58 -0700</pubDate>

									<content:encoded><![CDATA[<p>Real time data collection to improve the understanding of self care and patient care needs at the time of patient assessments.</p>


<div class="shared-activity-wrapper" data-activity-id="1478"><div class="shared-activity-preview" data-activity-id="1478"><div class="shared-activity-header"><div class="shared-activity-avatar"><img alt='' src='https://da973f9zbg0w5.cloudfront.net/wp-content/uploads/avatars/1/64da06386732e-bpthumb.png' srcset='https://da973f9zbg0w5.cloudfront.net/wp-content/uploads/avatars/1/64da06386732e-bpthumb.png 2x' class='avatar avatar-40 photo' height='40' width='40' /></div><div class="shared-activity-meta"><div class="shared-activity-author"><a href="https://360scdhub.org/members/sickle-cell-foundation-of-arizona/" data-bb-hp-profile="1">SCFA_Coach</a> posted a new post.</div><div class="shared-activity-time">2 months ago</div></div></div><div class="shared-activity-content"><p>FOR IMMEDIATE RELEASE Contact: Moses Akpan, President &amp; Founder, Sickle Cell Foundation of Arizona Email: info@scfa.org · Phone: 520-338-9560 Release date: September 4, 2026 Tucson,…</p>
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				<title>moses-akpan posted an update in the group Parents &#038; Family Leaders: We need you to take the lead. Lift Up the young, [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/322/</link>
				<pubDate>Thu, 21 Mar 2024 22:01:22 -0700</pubDate>

									<content:encoded><![CDATA[<p>We need you to take the lead. Lift Up the young, encourage the weak. Be the strength that encourages many and they seeks to see and the voice that takes away fear and restores Hope.</p>
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				<title>Dr_Rob posted an update in the group Parents &#038; Family Leaders: Families are groups where tips are shared, support is [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/176/</link>
				<pubDate>Wed, 24 Jan 2024 20:15:10 -0700</pubDate>

									<content:encoded><![CDATA[<p>Families are groups where tips are shared, support is given, and solutions are put in place.  Please use this Group to help your family members and help other families.  Here are 90 seconds of my thoughts on this.  I can&#8217;t wait to see what pictures, videos, suggestions, and discussions are shared. </p>
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