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	<title>360° SCD Hub | Mark360SCD | Favorites</title>
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				<title>SCFA_Coach posted an update: This post was from earlier this year, March 2025, but [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1179/</link>
				<pubDate>Thu, 31 Jul 2025 17:47:09 -0700</pubDate>

									<content:encoded><![CDATA[<p>This post was from earlier this year, March 2025, but still worth sharing as a great update from the NIH</p>
<p><iframe class="lazy" title="Vision for the Future of Sickle Cell Disease Research" width="640" height="360"  data-lazy-type="iframe" data-src="https://www.youtube.com/embed/KD5rfx6BkOE?feature=oembed" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" referrerpolicy="strict-origin-when-cross-origin" allowfullscreen></iframe></p>
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				<title>Sue posted a new post.</title>
				<link>https://360scdhub.org/?p=7650</link>
				<pubDate>Fri, 06 Jun 2025 15:44:06 -0700</pubDate>

									<content:encoded><![CDATA[ <div class="bb-content-wrp"><a class="bb-post-title-link" href="https://360scdhub.org/scdc-project-community-voices-2/"><span class="bb-post-title">SCDC Project - Community Voices</span></a> <div class="medium-insert-images ui-sortable">
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				<title>Sue posted a new post.</title>
				<link>https://360scdhub.org/?p=7658</link>
				<pubDate>Fri, 06 Jun 2025 15:43:18 -0700</pubDate>

									<content:encoded><![CDATA[ <div class="bb-content-wrp"><a class="bb-post-title-link" href="https://360scdhub.org/scdc-project-community-voices/"><span class="bb-post-title">SCDC Project - Community Voices</span></a> <div class="medium-insert-images ui-sortable">
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				<title>Sue posted an update: We look forward to co-hosting our first Community [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1060/</link>
				<pubDate>Mon, 19 May 2025 18:59:04 -0700</pubDate>

									<content:encoded><![CDATA[<p class="">We look forward to co-hosting our first Community Voices Listening Session with SCFAZ on May 22nd at 6:30.  Your voice is important to us.  We hope you will join us for this open forum meeting.  </p>
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				<title>Sue posted an update: SAVE THE DATE - First SCDC Listening Session is coming [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1057/</link>
				<pubDate>Mon, 05 May 2025 17:01:41 -0700</pubDate>

									<content:encoded><![CDATA[<p class="">SAVE THE DATE &#8211; First SCDC Listening Session is coming on May 22nd.</p>
<p class="">More details forthcoming as the date approaches.  Mark your calendars.</p>
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				<title>Dr. Rob posted an update: The local grant announcement is very exciting. [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1038/</link>
				<pubDate>Wed, 23 Apr 2025 20:06:09 -0700</pubDate>

									<content:encoded><![CDATA[<p>The local grant announcement is very exciting. </p>
<p>LaDeirdra Harris is right on target with her grant and vision for helping with respite care by tracking resources, patients and needs. This app can help her help all of us do a better job. I would be glad to discuss resource and respite matching use functions already built into this app. </p>
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				<title>Sue posted an update: We are thrilled to have two of our SCD community as part [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1035/</link>
				<pubDate>Wed, 23 Apr 2025 19:29:45 -0700</pubDate>

									<content:encoded><![CDATA[<p>We are thrilled to have two of our SCD community as part of this five-year SCDC grant.  Please allow me to introduce LaDeidre Harris and Olufisayo Akinnaso and their stories.</p>
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				<title>Sue posted an update: WE WANT TO HEAR FROM YOU!Please keep your eyes open [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1033/</link>
				<pubDate>Wed, 16 Apr 2025 19:38:46 -0700</pubDate>

									<content:encoded><![CDATA[<p>WE WANT TO HEAR FROM YOU!</p>
<p>Please keep your eyes open for details about our first Listening Session which will take place in May. Your warrior voice is important to us.</p>
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				<title>Dr. Rob posted an update: Top 10 Things to Do If You Are Aging with Sickle [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1019/</link>
				<pubDate>Fri, 28 Feb 2025 23:01:37 -0700</pubDate>

									<content:encoded><![CDATA[<p><b>Top 10 Things to Do If You Are Aging with Sickle Cell Disease</b></p>
<ol>
<li><b>Prioritize Regular Medical Checkups</b><b></b></li>
<ul>
<li>Schedule frequent visits with your hematologist and primary care doctor to monitor organ function, blood counts, and any complications related to aging with SCD.</li>
</ul>
<li><b>Manage Pain Effectively</b><b></b></li>
<ul>
<li>Work with your healthcare team to create a comprehensive&hellip;</li>
</ul>
</ol>
<p><span class="activity-read-more" id="activity-read-more-1019"><a href="https://360scdhub.org/activity-feed/p/1019/" rel="nofollow"> Read more</a></span></p>
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				<title>Moses posted an update in the group General Community: Something for all of us to think about in the mist of [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1009/</link>
				<pubDate>Tue, 18 Feb 2025 16:12:30 -0700</pubDate>

									<content:encoded><![CDATA[<p>Something for all of us to think about in the mist of our busy lives &#8211; Watch and enjoy!</p>
<p><a target='_blank' href="https://www.youtube.com/watch?v=yPNBwFctCu4&#038;list=PL_ntiNjc6GvnWVCoDo40liUaM1G_yM_5T&#038;index=2SCD" rel="nofollow">https://www.youtube.com/watch?v=yPNBwFctCu4&#038;list=PL_ntiNjc6GvnWVCoDo40liUaM1G_yM_5T&#038;index=2SCD</a> Brochure for the Community. In Partnership ADHS we distributeds this brochure at a number of events including Blood Drive.</p>
<p><iframe class="lazy" title="Taking Care of Our Hearts to Build Heart-Healthy Communities" width="640" height="360"  data-lazy-type="iframe" data-src="https://www.youtube.com/embed/yPNBwFctCu4?feature=oembed" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" referrerpolicy="strict-origin-when-cross-origin" allowfullscreen></iframe></p>
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				<title>Moses posted an update in the group Community Health Worker BASICS: https://content.govdelivery.com/accounts/AZPIMA/bulletins/3d2629e</title>
				<link>https://360scdhub.org/activity-feed/p/1007/</link>
				<pubDate>Tue, 18 Feb 2025 15:59:38 -0700</pubDate>

									<content:encoded><![CDATA[<p><a target='_blank' href="https://content.govdelivery.com/accounts/AZPIMA/bulletins/3d2629e" rel="nofollow">https://content.govdelivery.com/accounts/AZPIMA/bulletins/3d2629e</a></p>
<div class="activity-link-preview-container"><div class="activity-link-preview-image"><div class="activity-link-preview-image-cover"><a href="https://content.govdelivery.com/accounts/AZPIMA/bulletins/3d2629e" target="_blank"><img src="https://da973f9zbg0w5.cloudfront.net/wp-content/uploads/2025/02/21103427/cwd-color-govdelivery_original.jpg" /></a></div></div><div class="activity-link-preview-info"><p class="activity-link-preview-link-name">content.govdelivery.com</p><p class="activity-link-preview-title"><a href="https://content.govdelivery.com/accounts/AZPIMA/bulletins/3d2629e" target="_blank" rel="nofollow">Pima County Youth One-Stop Service Center moving to new location</a></p><div class="activity-link-preview-excerpt"><p>Pima County Youth One-Stop Service Center moving to new location</p></div></div></div>]]></content:encoded>
				
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				<title>Mark360SCD posted an update: If you are asking yourself, "Am I doing enough?". You [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/1003/</link>
				<pubDate>Fri, 14 Feb 2025 19:22:32 -0700</pubDate>

									<content:encoded><![CDATA[<p>If you are asking yourself, &#8220;Am I doing enough?&#8221;. You are. Sending love to all Warriors and families today and everyday. </p>
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				<title>SCFA_Coach posted a new event.</title>
				<link>https://360scdhub.org/?post_type=mec-events&#038;p=7529</link>
				<pubDate>Wed, 12 Feb 2025 17:03:22 -0700</pubDate>

									<content:encoded><![CDATA[ <a class="bb-post-img-link" href="https://360scdhub.org/events/2025-scd-quarterly-community-roundtable-advancing-together-in-person-interactive-live-broadcast/"><img src="https://da973f9zbg0w5.cloudfront.net/wp-content/uploads/2025/02/21103425/Sickle-Cell-Advancing-Together-Arizona-Community-Roundtable-Title-12.png" /></a> <div class="bb-content-wrp"><a class="bb-post-title-link" href="https://360scdhub.org/events/2025-scd-quarterly-community-roundtable-advancing-together-in-person-interactive-live-broadcast/"><span class="bb-post-title">2025 SCD Quarterly Community Roundtable: Advancing Together (in-person &amp; interactive LIVE Broadcast)</span></a> <p><img width="624" height="351" src="https://da973f9zbg0w5.cloudfront.net/wp-content/uploads/2025/02/21103425/Sickle-Cell-Advancing-Together-Arizona-Community-Roundtable-Title-12-624x351.png" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="" /> We’re excited to invite you to the SCD Quarterly Community Roundtable: Advancing Together on February 28, 2025, from 2:00 pm  – 4:00 pm, in person…</p>
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				<title>Akilah posted an update: Hey everyone! Make today a great day! You can do it... I [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/973/</link>
				<pubDate>Tue, 11 Feb 2025 17:08:58 -0700</pubDate>

									<content:encoded><![CDATA[<p>Hey everyone! Make today a great day! You can do it&#8230; I am rooting for you! &#x1f60a; (and stay hydrated&#8230; it&#8217;s getting kinda warm in AZ)</p>
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				<title>Akilah posted an update: Highlights from the month of JanuaryMLK Celebration, [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/961/</link>
				<pubDate>Fri, 07 Feb 2025 21:28:41 -0700</pubDate>

									<content:encoded><![CDATA[<p>Highlights from the month of January</p>
<p>MLK Celebration, Kappa Alpha Psi fundraiser &#8211; Blue in the Night. </p>
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				<title>Moses posted an update: CALLING ALL READERS!Have you read a book recently that [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/924/</link>
				<pubDate>Tue, 10 Dec 2024 16:17:04 -0700</pubDate>

									<content:encoded><![CDATA[<p>CALLING ALL READERS!</p>
<p><span>Have you read a book recently that you loved? Do you want to share your favorite book with other library patrons?  SEE THE ATTACHED DOCUMENT</span></p>
<p><span><br /></span></p>
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				<title>Moses posted an update: Talking Book LibraryFAMILIES &#38; FRIENDS - TAKE ADVANTAGE [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/923/</link>
				<pubDate>Tue, 10 Dec 2024 16:00:40 -0700</pubDate>

									<content:encoded><![CDATA[<p>Talking Book Library</p>
<p>FAMILIES &amp; FRIENDS &#8211; TAKE ADVANTAGE OF THIS GREAT RESOURCE</p>
<p>The Arizona Talking Book Library provides free audio book delivery/downloadable services to the visually impaired, physically limited, and print disabled throughout the state; any person who cannot read standard print, hold a book, or turn pages is eligible for this&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-923"><a href="https://360scdhub.org/activity-feed/p/923/" rel="nofollow"> Read more</a></span></p>
<div class="activity-link-preview-container"><div class="activity-link-preview-info"><p class="activity-link-preview-link-name">azlibrary.gov</p><p class="activity-link-preview-title"><a href="https://www.azlibrary.gov/talkingbooks" target="_blank" rel="nofollow">Just a moment...</a></p><div class="activity-link-preview-excerpt"><p>Just a moment...</p></div></div></div>]]></content:encoded>
				
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				<title>Moses posted an update: BANNER UMC- PHOENIX - Operation Staff &#38; Resident Doctors. [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/918/</link>
				<pubDate>Mon, 09 Dec 2024 20:32:47 -0700</pubDate>

									<content:encoded><![CDATA[<p>BANNER UMC- PHOENIX &#8211; Operation Staff &amp; Resident Doctors. So exciting to be connecting with incredible team- Thanks to Dr Newman</p>
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				<title>Moses posted an update: The 5th Annual Kwamie Lassiter Memorial Golf [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/915/</link>
				<pubDate>Tue, 03 Dec 2024 15:50:39 -0700</pubDate>

									<content:encoded><![CDATA[<p>The 5th Annual Kwamie Lassiter Memorial Golf Classic- February 22,2025. Register below <a target='_blank' href="https://birdease.com/KwamieLassiterMemorialGolfClassic" rel="nofollow">https://birdease.com/KwamieLassiterMemorialGolfClassic</a></p>
<p>PROMOTE !!! SUPPORT !!!</p>
<div class="activity-link-preview-container"><div class="activity-link-preview-image"><div class="activity-link-preview-image-cover"><a href="https://birdease.com/KwamieLassiterMemorialGolfClassic" target="_blank"><img src="https://res.cloudinary.com/birdease-pro/image/upload/b_white,c_pad,w_1080,h_1080/EventImages/b3f325be-1bbf-45c2-b723-d72e354f85c2" /></a></div></div><div class="activity-link-preview-info"><p class="activity-link-preview-link-name">birdease.com</p><p class="activity-link-preview-title"><a href="https://birdease.com/KwamieLassiterMemorialGolfClassic" target="_blank" rel="nofollow">The 5th Annual Kwamie Lassiter Memorial Golf Classic</a></p><div class="activity-link-preview-excerpt"><p>The 5th Annual Kwamie LassiterMemorial Golf Classic The Kwamie Lassiter Foundation is hosting its 5th Annual Kwamie Lassiter Memorial Golf Classic! We invite you to join us for a fun-filled round of golf on Saturday, February 22, 2025. This 18-hole scramble &hellip; <a class="activity-link-preview-more" href="https://birdease.com/KwamieLassiterMemorialGolfClassic" target="_blank" rel="nofollow">Continue reading</a></p></div></div></div>]]></content:encoded>
				
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				<title>Akilah posted an update: We had a great time at the Support &#38; Empowerment meeting [&#133;]</title>
				<link>https://360scdhub.org/activity-feed/p/913/</link>
				<pubDate>Tue, 03 Dec 2024 01:48:09 -0700</pubDate>

									<content:encoded><![CDATA[<p>We had a great time at the Support &amp; Empowerment meeting on Friday! It was fun to catch up with the individuals that attended. I&#8217;m glad everyone had a great Thanksgiving.</p>
<p>We <b>all</b> learned a lot about each other and our SCD Warriors. I also shared a tip sheet I created about cold weather readiness &#8211; &#8220;5 Cold Weather Tips for SCD Warriors&#8221;. I am&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-913"><a href="https://360scdhub.org/activity-feed/p/913/" rel="nofollow"> Read more</a></span></p>
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